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605d
That moment of pure disappointment when you wait to see a specialist located in a large city, known for medical care, and you realize almost immediately at the visit that you know more about your disease than they do, nor are they willing to try to help you. I should start producing my own Superbills for these doctors, I could use a $45 copay for doing absolutely nothing as well.
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Ehlers-Danlos Syndrome (EDS)
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599d
I feel this everytime I go 2 any appts. I do so much research, since they can't ever figure anything out themselves. Basically I have 2 tell them what I want them 2 do or test me for. I send myself IMs 2 show them what I find at later date. Not 1 Dr has put together my symptoms and helped. It's been 10+ years I been suffering. If I gotta do their job so b it just do SOMETHING!! I Received the hypermobile bladder diagnosis and not 1 has said " oh let's make sure she doesn't have EDS" hmmm????? I fit all the criteria. They know about my joints and fatigue and lumbar stenosis. I'm super small and flexible, Well until u throw in the DDD AND ARTHRITIS AND SWELLING. They generally don't care, probably think I'm a hypochondriac, but I'm tired of suffering, just wanna rule things out so I may get closer 2 the right answer. Isn't that what Drs are supposed 2 do?
598d
@Jlync80 I completely feel this 💕 the frustration at times is overwhelming. I’m not a vindictive person but… lol the moment when a provider needs to “eat crow” bc they were closed minded and wrong is a wonderful temporary feeling. I do hope and pray for all of us out there suffering with “unknown or unexplained” Illnesses we finally get some much needed relief soon! Until then though… we shall keep looking for answers! 💕🤘🏻
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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