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880d
has anyone tried doing saline infusions as part of their treatment? we have been thinking of talking to my cardiologist about them since medication isn’t really doing much for me.
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Postural Orthostatic Tachycardia Syndrome (POTS)
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873d
Smash - I might talk to my cardiologist about them during my next appointment just to try them out and see how they go before committing to doing them more often
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Unicorn19 - Yeah i’ve been on medication for a while now and they’ve even adjusted the dose and changed/added medication and it’s not doing much for me at all
874d
I do! I love it. Medication and salt don’t really do much so the infusions really help. I only do one every other week right now but I’m hoping to get them weekly since they work so well for me.
I do twice weekly saline as well, otherwise I feel awful. Meds and salt didn’t help a a ton either. Unfortunately the saline only lasts a 1-3 days in my experience but some people only need it weekly!
876d
My sister does them almost weekly if not more If need be. Theyre life saving for her. I use liquid iv and salt tablets and that's been a big help for me
The infusions were very helpful when my POTS became unstable, I would not recommend them before medication is tried though
879d
Unicorn19 - did you like the saline?? How helpful was it for you
I did salin only as part of my treatment for a year before getting my feeding tube. It kept me stable enough to keep me working. I still do Iv hydration as part of my overall plan with my TPN because I have a higher hydration need because I also have Addisons but I had to have my Endocrinologist and my gastroenterologist work together to form a plan.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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