Trusting My Fibromyalgia Diagnosis

I'm glad this app showed up during one of my games I play on my phone. Im finding out so much about my diagnoses that the drs have never told me. There should be drs monitoring this app so they can be a part of knowing it too. So it can be put in like records or something for other patients. For people who have no clue ya know what I mean?

I’ve always thought there is something my doctors are missing

Yes, I have always struggled even after 11 years since I was diagnosed. Personally, I feel like there is a huge lack of validation of our symptoms and experiences with a Fibro dx. It seems so often we get brushed off or told it's not that serious or toted off with some new diet or physical therapy. I developed a lot of comorbidities over the years and it's so frustrating to feel like I have no answers or control. But I'm still fighting, advocating, and searching for more answers.

And see noones ever told me there's other things associated with fibro. Dumb drs tell me they don't know why I'm in so much pain. Ffs

I see my fibro as a symptom, definitely nit a cause or an isolated incident. The NP that diagnosed me was also a quack and didn't listen to much I had to say.

My 1st autoimmune diagnosis was Fibromyalgia. I was diagnosed at Mayo Clinic. You know something is wrong. The doctors know something is wrong. I believe I found myself questioning for a few reasons. 1. Because it felt like coworkers, friends, chiropractors, and even a couple family members were questioning the diagnosis. 2. No one could see what was wrong with me by looking at me. 3. I DID NOT want to hear I couldn't fix it for good. Just some food for thought....

I had like injury telated fibro..i injured myself and worked untreated for over 2 years and by the time i got treated my body was in severe pain even after addressing each body part injury..it makes sense to me..chronic acute pain damaged my pain pathways

Yes!!! Just recently thought they’d got it wrong and I had PCOS xo

I forgot to mention… within a year I was diagnosed with Raynuads Syndrome & POTS.. I also now have imaging proving that I have a type of scoliosis, renal cyst and thyroid nodules.. i feel like this can all be tied together but my doctors are saying they aren’t.. it’s so confusing…

I actually spoke to my PCP about this yesterday. I've been questioning my diagnosis every day for the last 15 or more years. She is going to send all of our conversation to my neurologist and have her talk to me about it as well.

Totally. I was diagnosed with EDS in my teens, with HSD later on, and now although fibromyalgia explains maybe 50% of what I experience on a daily basis, there are other conditions that have similar symptom patterns. I look at these and wonder if I should go back to the Drs and ask for further tests, in case it's something that can actually be treated and mot just managed.

Every day for the past 8 years. Smh I have some days where I’m like “I have fibromyalgia” but then there are others where I’m still searching for answers.. begging for answers

100%

Yes defo have lots of doubts