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aldrwytch

401d

I’m just feeling really tired and frustrated. I’m 28 and I have comparable health issues (in many but not all ways) to my 50+ parents, who are usually still able to do more than me, more easily. Of course I’m grateful that they’re in relatively good health, but the comparison makes me scared for my future as I age. I want to be able to make a good life for myself—pursue my professional ambitions, make my own money, travel, all of that, but I can barely manage a part time job living at home, and I know my whole family is waiting and hoping I’ll start improving and be able to do more, but I don’t know if that will ever happen. It’s just so hard to accept it all, knowing how uncertain the future is.

Top reply
    • Nightshxde

      398d

      I can definitely relate. I am constantly tired and feel much older than I am.

    • Nightshxde

      398d

      I can definitely relate. I am constantly tired and feel much older than I am.

    • ViikMal

      401d

      The future is so uncertain, but you're on the right track. I don't know if it helps but one of the ways that I like to look at it is I'm not looking to improve, I'm not looking for the magical moment when the pain goes away and everything gets better. I'm just looking to make my body run at maximum efficiency with the illnesses, symptoms, and issues that it has going on that I can't change. Remember that your car gets a certain type of oil for a reason. You don't put 5W-20 synthetic oil in an engine that's supposed to run on 10W-40 organic, or it starts to run inefficiently. Your body is the same way, from food to medicine to therapy to other medical treatment to repetition of the light versions of the hard physical things until you can do it slightly more and better. Once you get your personal machine optimized to the best of your capabilities, the rest like working longer hours, doing more physical activity, and just generally doing more with that machine comes easier and more naturally.

      • aldrwytch

        401d

        @ViikMal Thanks 🖤 I’m really trying to get to that place of accepting that this is my reality. I spent over a decade trying to convince people to diagnose me (which has partially succeeded?) but while searching, undiagnosed, I’d held onto the hope that I was going to find that magical doctor who would do the right test, and find some explanation that could be treated or managed to the point where I could have what I then thought of as a “normal” life, plus medication and an occasional side-effect or two. Unfortunately, PCOS, ADHD, and Ankylosing spondylitis don’t work that way, and I may never even get a diagnosis at all for my remaining symptoms, let alone a treatment. I’m working with a wonderful therapist on radical acceptance…. It just comes very difficult to me.

        • ViikMal

          401d

          @aldrwytch I have stopped trying to get diagnosis and started only addressing the symptoms I'm having. It's been incredibly effective, especially when paired with a change of personal language. When I tell someone 'I experience this symptom x amount of time', they are more likely to understand and accept it as fact than when I tell someone 'I think I have Y diagnosis'. I know what my body is doing and experiencing with me, I know how my body is feeling, I do months and years of research, I actively look for confirmation bias and look into differential potential diagnoses to ensure that I'm not jumping to conclusions, and I asked the people around me to describe certain behaviors or symptoms that I exhibit. This has been incredibly effective at making the people around me, medical professionals included, listen to me and give me the tests that I need or if they can't give me the resources to get the tests that I need. The medical system especially in America, I don't know if you're there but that's where I am at, is highly unlikely to actually take people who are chronically ill seriously. This is even more especially true if those people are assigned female at birth, if they are visibly queer, if they are people of color, if they are plus sized, if they wear glasses, and if they dress down or dress in a way that is less than business casual or suburban middle class. It also becomes harder to get quality treatment if you are low income, if the only thing you come with is a statement of pain, if you ask for benzodiazepines or opiates or most pain relievers, if you present with any sort of menstrual or womb or breast based issues, if you smoke drink self harm or do drugs, if you have certain benzo and pain relief rxs from another or previous dr even if they're totally legit and needed. You are worth being listened to, you should not have to live in pain, and you are worth being treated like a human being. If your radical acceptance plan doesn't include your boundaries being respected, your issues being taken seriously, and your symptoms being listened to, then I would highly recommend formulating a new acceptance plan because the bar is on the ground at that level.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user shared their experience, saying they had to grieve the possibilities for a long time, accept some of their limitations, and walk away from the shame associated with them. They eventually recognized the ways in which their circumstances make them more qualified for certain things than other people, such as having a greater capacity for empathy (fa664415-5bc0-47f6-9079-a1364e792e18). Another user mentioned taking things one day at a time and focusing on what they can do instead of comparing themselves to others (d059fa18-8e06-4a4c-b481-6f97f08b6ba1).

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