I feel like my Endo has progressed to stage 4 but I can't tell 🤷🏼♀️ is there anything I can watch for to see if my suspicions are true?
Chronic Generalized pain
I’ve heard a few different interpretations of what the stages mean for us with endometriosis. I agree that stage 4 is when you can no longer function in your day to day life. That’s what it was for me when I had excision surgery. I never had a day without pain. When it started it was one or two days a month. What are you doing now to treat your pain and symptoms?
I'm taking a special tea that's made from a plant grown in the SE Asia region and the pain relief is comparable to that if morphine and anytime I get morphine in my system, it doesn't take me long to bee feeling real good. But I'm afraid it's getting worse, like I have strong suspicions. Because when I wake up, most days I feel exhausted and want to go back to sleep. And almost 100% of the time, I do for a couple more hours then I really get up and try and move around.. That's no surprise to me tho, I've already figured out that my pain is affecting my sleep, and can't tell you how long is been, as time has not been a relative thing to me for quite awhile, since I've went to sleep because I'm tired... When I go to sleep, I don't because I'm tired, I go to sleep because the pain is bad enough to 1) keep me awake for a few hours and 2) to make me pass out from the pain. Ik that's not proper sleep.
I'm also using a wheelchair l, because even when I take (what I call) my 'pain juice' I still can't walk around for long periods of time because I have a ridiculously high metabolism (some people have asked if I'm anorexic) and the effects of my pain juice wear off a lot quicker than I want, so for me to stay out of pain, especially when I'm not home, I need to use my wheelchair.
Stages refer to the places endo is found and the depth it grows to. It’s only a surgical term, it’s not correlated with any specific set of symptoms. The only way to find what stage you’re at right now is to have surgery
I was completely disabled with stage one like other people have mentioned the stage refers to how many areas are affected and how large those areas are. For me the endometriosis was just sitting in a place where bending, squatting, and sitting was ripping them apart causing a lot of pain and inflammation.
I have stage IV endometriosis and had no idea it was that bad until I actually had surgery (neither did my gyno, the poor guy was stunned I was capable of sitting up and speaking without screaming when he got a look at my pelvis). my mom figured out I probably had endo when I was about 15 and it only got worse from there. I still can't cough, sneeze, laugh, anything jerky without feeling my organs being pulled on by the scar tissue adhering them to themselves, each other, and my abdominal wall.
I can't even walk as much as I used to. Because my medicine will wear off quicker than I want it to if I try. Whenever I'm out of the house, I have to use this wheelchair I bought off of Amazon so my medicine will work for the whole day or at least until I go to bed
I have a female gynecologist, I've been trying to convince her that I need a Hysterectomy (more specifically a Total Abdominal Hysterectomy with Bilateral Slapingo-Oophorectomy) I know it will greatly improve my quality of life. The life I'm living right now, and my family has openly said this many times, is not even a life. I'm in constant pain (that's no exaggeration), I'm not getting proper sleep anymore, and now because I'm not getting proper sleep I'm waking up around 8am and without even moving, I'm feeling exhausted and just completely drained and I go back to sleep and wake back up around 10am and I still feel like that, but I force myself out of bed so I can take my medicine (that helps with my pain) and get some kind of food into my system and hope that me walking around a little bit will also help me get more energy
I had a hysterectomy for my pain, if you want to talk about it at all message me!
Okay so pain and symptoms do not correlate with amount of disease. The only thing you can really look out for is things like organ failure, which isn’t common in any stage. Really without surgery or at least an MRI looked at by someone trained to see endo, you can’t really know. I know it’s frustrating but your best bet is definitely to see an excision specialist and talk to them!
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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