Erinnewbold

97d

Does anyone have any helpful tips about your period and POTs? My symptoms get like three times worse during my period and I was wondering if there is something else I should be trying? I already take salt tablets and eat lots of salt and drink water and electrolytes all the time and wear compression socks. Just looking for some helpful relief tips if anyone has any.

Generalized pain

Feeling of choking

Postural Orthostatic Tachycardia Syndrome (POTS)

Dizziness

View all
  • readingrainbow

    97d

    this happens to me too and i have no clue what to do :(

    • Erinnewbold

      97d

      it sucks because it doesn’t seem like anybody does. I wish we weren’t like this girl ❤️

  • EDSdancer

    97d

    I would say try taking an iron supplement on your period, and we just have to be extra gentle with our bodies

    • Erinnewbold

      97d

      I think I will try the iron supplement tomorrow! Thank you for this idea! I didn’t even think of it.

      • EDSdancer

        96d

        ofc! Hope it helps 🙏

  • cinnabunni

    97d

    Compression socks seriously save me and weird as it is I still wear them in the shower so I don’t pass out

    • cinnabunni

      97d

      I know you said you already wear them I just wanted to clarify I DID read that haha I needed to throw in the shower tidbit in case that helps manage pain or ease symptoms in any way ( I’m so scatterbrained tonight I’m sorry )

      • Erinnewbold

        96d

        the shower is the worst for me so maybe I will try this. I end up being able to stand to shampoo but have to sit for everything else. So I can stand in there for like 5 minutes and then I’m done 😂

    • EDSdancer

      96d

      oh the shower is the worst for me 😅 like I want it warm because it feels nice but then I always get lightheaded

  • Asteroidrose

    96d

    this happens to me too. but I do everything I can and I'm in physical therapy.. so idk what i should do

    • Erinnewbold

      96d

      I am also in PT. I truly don’t know what else to do either

      • Asteroidrose

        96d

        yeah.. its like im stuck in a constant loop.

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