leftinwonderland

242d

what specialists have you found helpful?

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

Fibromyalgia (FM)

Systemic Lupus Erythematosus (SLE)

View all
  • Kitty83

    242d

    None. When I was first diagnosed with fibromyalgia my pcp thought it might be lupus and sent me to a rheumatologist. The rheumatologist determined that it was not lupus, but was fibromyalgia, and promptly told me that they did not treat fibromyalgia. 😒

  • Cherry_Madame

    214d

    Stanford CFS clinic

  • WhistleWhileYouWait

    214d

    Neurologist seemed to help for migraines. Allergy specialist inasmuch as I was able to start immunotherapy. Probably most helpful was my ENT to discover the spur on my septum ans get surgery to shrink tissues, remove spur, and straighten septum. They found a sinus cyst the size of a grape while they were in there. The migraines and headaches did not go away, but I feel pretty sure that having fewer upper respiratory problems has only helped my journey.

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