Hello, lupie here diagnosed in 2013 after being misdiagnosed as MCTD since 1998. Diagnosed with RA in 2020. Recently diagnosed with Wegener’s Granulomatosis, Otosclerosis, & have had pulsatile tinnitus for 5 years. Also diagnosed with fibromyalgia in 2010. Married, mom to a 5 year boy, 22 year old daughter who’s passed away & a 22 year old son who chose to live with his dad, my ex husband. I also have medication resistant depression, PTSD, & anxiety. Currently only taking Plaquenil for lupus with occasional steroid dose pads.

Systemic Lupus Erythematosus (SLE)

Anxiety (Including GAD)

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  • MrsCoin


    ✋hi welcome

  • Alexandria1


    My mom also has both Sle and granulomatosis. I've always had issues with my lungs since a child so I wonder if I could have it too.

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