Igglepiggle

37d

Currently under assessment for lupus, it’s almost certainly an immune system disorder I have. Been struggling with it for the last 3 years I think triggered by stress, my fatigue is so bad my life has basically stopped, I was surprised when my doctor suggested lupus as I’m Caucasian and have heard it’s uncommon in my race and I haven’t experienced a facial rash of any kind, but the more I look into lupus the more I relate. My main concerning symptom as of recent that lead to a lot of blood work is chest pain and tachycardia which had me in the emergency room, I’m only 19 I have very low blood pressure usually but a high heart rate and I’m just tired, want to know how to get better.

Abdominal Distention

Chronic Generalized pain

Systemic Lupus Erythematosus (SLE)

acute lethargy

Chronic Tachycardia

Chest pain

View all
  • Lilspoonie

    37d

    Hey I’m 21 so similar age and also white. I have been diagnosed with an unspecified connective tissue disorder (they’re saying probable early lupus) so certainly possible for you. Definitely good to catch early so they can get the right medication and protect your organs

    • Igglepiggle

      37d

      thank you, yes I was under a lot of stress 2/3 years ago and since then I’ve been really unwell, unbearable fatigue and a lot of aches and random pain, I recently realised I’m likely hyper-mobile and well it’s all moved very quickly from me thinking it’s all just my adhd to realising how my issues are from my physical health and I’m just hoping I can figure it out and get my fatigue under control and of course prevent any terrible illness, as it’s been debilitating

    • Igglepiggle

      37d

      the doctor said they found “3 connective tissue markers” in my blood result from the rheumatoid exam, do you know what that means as I’ve been puzzled? Could that mean like elbow, finger, knee? Or skin, joints, organs?

      • Lilspoonie

        37d

        that would mean something such as ANA (Google this) which are signs in your blood work that can point towards something like lupus or other disorders

  • nic.elodeon

    37d

    I have pre-/undifferentiated lupus and I bounced around a lot of diagnoses before getting mine. I hope your tests answer your questions and help you feel less fatigue!

    • Igglepiggle

      37d

      thank you this support is really lovely I only just heard of this app and didn’t expect any responses, it’s been a long while of living with no answers but it does feel good to finally be being listened to by doctors and starting on a diagnosis I really hope I can get more answers and maybe some treatment I had to drop out of school from it which hurt as I’ve always been big on my education but they weren’t supportive enough so I’m really hoping to get better and be able to have a life again

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