Living with Kartagener's Syndrome: Seeking Support

@LlolaLlama oh wow!! I know of 1 other person who has Kartagener's Syndrome, and they are very young. Yes, the distinguishing component between PCD and Kartagener's Syndrome is the situs inversus totalis. It's miraculous that you were able to have a baby. That's great! Usually with PCD the males are sterile, and the females are at high risk for tubal pregnancies. So you have lung and sinus disease like me? Do you have issues with your kidneys and pancreas? The ciliary dysfunction causes problems with kidney filtration, and pancreatitis/pancreatic insufficiency. I have to take enzymes when I eat, so that anything will digest properly. I would imagine that like cystic fibrosis PCD comes in variable severity. I feel extremely blessed to be doing as well as I am. I'd love to chat with you sometime. I need to check back here more often than I do.