Is seeing a geneticist expensive? My PCP refuses to listen to my physical issues and seeing a geneticist sounds so much easier than seeing a rheumatologist or cardiologist to oficially diagnose everything.

Ehlers-Danlos Syndrome (EDS)

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  • UnluckyUnicorn


    Mine was $1,200 but I had double insurance so I didn’t have to pay anything

  • thistle


    I'm not sure how much mine was, but in my experience wait times for adults can be up to 3 years. I was able to go through Childerns hospital since I am under 22, but even then it was upwards of 8 months. Some places will only take you if you have a specific referral as well. I wish you the best of luck. It's hard to get doctors to listen to you. It sucks. You deserve way more. I had to pester, annoy, and complain for YEARS to get the referral and even then they were apprehensive. It sucks. I hope you find your way 💚

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