Due to scleroderma, my esophagus is atonal, does not work at all. I amOn a fully liquor diet.
Scleroderma (Crest Syndrome)
Oh no. I am so sorry.
Will you get better after awhile?
- no, not unless I can get some new kind of procedure done.
that should have said liquid diet. How funny!
Praying for you
Has anyone had serious issues with their lungs
It’s getting harder and harder to breath. I’m already on 5 L of oxygen 24 seven but it’s getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe
No I don't. I got diagnosed last year
A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.
are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula
Scleraderma is the worst and to be honest not many doctors know much about it it’s frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they don’t understand it it’s frustrating
it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract.
Wishing you more good days than bad.
One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me
🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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