Eloise

308d

Due to scleroderma, my esophagus is atonal, does not work at all. I am
On a fully liquor diet.

Scleroderma (Crest Syndrome)

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  • Overcomer

    305d

    Oh no. I am so sorry.

  • Overcomer

    305d

    Will you get better after awhile?

    • Eloise

      304d

      - no, not unless I can get some new kind of procedure done.

    • Eloise

      303d

      that should have said liquid diet. How funny!

  • Overcomer

    303d

    Praying for you

  • Mariarita

    297d

    Has anyone had serious issues with their lungs

  • Mariarita

    297d

    It’s getting harder and harder to breath. I’m already on 5 L of oxygen 24 seven but it’s getting harder every day because my Scaleraderma is seriously Affecting my ability to breathe

  • Overcomer

    297d

    No I don't. I got diagnosed last year

  • Overcomer

    297d

    A few weeks ago I found out that I have muscle tension dysphoria. But my lungs and heart is good.

  • witchynurse

    289d

    are you using a nasal cannula for your o2? maybe it is time to ask your pulmonologist about getting a high flow nasal cannula

  • Mariarita

    287d

    Scleraderma is the worst and to be honest not many doctors know much about it it’s frustrating to tell a doctor you have scleroderma and they almost look at you is if you have two heads they don’t understand it it’s frustrating

    • SEAGAL

      273d

      it is a text book illness. It affects your connective tissues which are from your head to your toes. You are your own best doctor. Many meds I took affected my digestive tract. Wishing you more good days than bad.

  • Overcomer

    272d

    One doctor tells me it is just a skin disease and brush me off. Yet the doctors who knows about scleroderma are very concerned and caring towards me

  • TokingRainbow

    270d

    🤗I see a rheumatologist for my scleroderma. I also have smoldering multiple myeloma.

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