Stories
Privacy
Download
See Alike in...
Alike App
Browser
787d
how do you handle being in a social setting with the NF
1
8
Share
Neurofibromatosis (NF)
advertisement
766d
I’ve had a few people notice especially when I was a cashier, it’s been hard because I moved to Florida and dressing for warm weather is hard.I have the skin tumors on my chest. The people that noticed it most is kids, but to be honest they are really sweet about it and then we become best friends and it gives me a little confidence about knowing the next generation doesn’t judge as bad as I thought.
0
767d
ps my name is Rebecca too ❤️
I’m lucky enough that you can’t really tell from the outside, most of my tumors live under my clothes, but socially I feel like it’s made me anxious and awkward, and I struggle with wanting to date or be intimate because of having to explain all the bumps on my back and stomach, so I avoid dating apps or putting myself out there
For me I never realized that so many people didn’t realize or notice it. Growing up I figured everyone knew and since I went to a smaller school I figured at least my grade knew. When I got to college it dawned on me that most people would never know unless I told them and it was both a good and bad thing. People never treated me differently, but then when there were things in life that were affected by my NF, it would’ve been nice if they knew so they could understand. Not sure if that helps, but for me unless someone asks about some of my physical signs, I don’t feel the need to tell them.
2
Your lucky about that. I am extremely self conscious about it. I have some on my face and the rest are all over my body.
Most people don't mention anything
I am more asking about how other people react
I'm okay with it... Depends on what you what you mean I suppose. Most people don't notice anything. Even though I have some pretty major scarring from surgery. And some tumors in my right eyelid area..
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions