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long rant, I'm sorry. I'm really struggling. I've been having severe flares of some "mystery" autoimmune or Neuro condition that is destroying my life. its likely to be MS, but I don't know, all I know is the symptoms are awful and I don't know how to deal. I started having a flare back in the beginning of January, the worst I've had probably ever. I tried to push through and keep working, but come the end of Jan, I ended up having to call out multiple times/reduce my work schedule. as the days went by, my pain just got worse and now I'm not working at all, trying to recover. I have no insurance, the e.r. only did a lumbar CT to make sure nothing was broken, and referred me to Neuro to get checked for MS. the problem is, while I wait for Medicaid to get approved so I CAN see a doctor, how am I supposed to survive? I'm screwing up skills I mastered over 6 years ago, I'm accidentally hurting myself bad enough to bleed without realizing, I can't hold a coherent conversation with customers, I'm scared to drive because of the double vision and the cognitive/neuro symptoms, I've nearly blacked out or fallen so many times every day it's insane... I can't get any financial help or any sort of aid either because I'm not diagnosed with whatever this is. what am I supposed to do? I can't make money without my health getting better, but my health won't get better without seeing a doctor. it seems like nobody cares if I get an answer or not. I haven't held a job for more than 5 months in 5 years because of this, always having flares and calling out doesn't get you any favors. no doctor would even listen to me for a second when I tried to get help though. I was too young, too fat, too anxious for them to care. if they'd just listened to me years ago, maybe I'd have a diagnosis already and maybe my ability to walk wouldn't have degraded like this. I know I won't have an answer in the next 6 months. I have a rock solid secure living situation, but it's been made clear to me no one will aid me in paying my bills while I'm unable to work. I don't even have the spoons to engage in TEXT conversations, how am I going to make money? and I really am so concerned that the hospital might have missed something right in front of their faces. I went in and the only test they conducted was the lumbar CT. no blood draw, no MRI, no brain imaging at ALL, no spinal tap, nothing to rule out serious conditions. they just shrugged and said go to Neuro. it's been over 2 weeks since the e.r. saw me and the only improvement I've made has been my pain has lessened, every other symptom has gotten worse or stayed the same... do I go back?
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Multiple Sclerosis (MS)
Ehlers-Danlos Syndrome (EDS)
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