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Dealing with Health Issues: Exhausted and Alone

coffeequeen

714d

its so hard dealing with so many health issues my drs never know what to do. im exhausted physically , mentally, emotionally. burnt out trying to get answers or relief. Feeling very alone :(

11

18

18

Acute lethargy

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Top reply
    • wise

      713d

      the burnout will pass. doing your own research is not the horrible thing doctors try to make it out to be, they're just mad that now anybody can gain the knowledge and experience they had to go hundreds of thousands of dollars into debt for. some doctors will be extremely grateful for your knowledge of your body and how your symptoms are affecting you, and some doctors will get angry (read: insecure) that you think you know as much as they do (a claim you never made, but they'll act like you did as you spit on their degree). sometimes throwing yourself into it and/or centering your life around personal research can help with accepting that this IS your life now, you just have to get through the initial burnout

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    • Soskae

      713d

      The conditions themselves aren’t what get me down it’s dealing with them and doctors/the public that exhaust me. Things like forcing my pharmacy to order in all 800 meds because they won’t do it on autofill like they say they will or trying to convince a doctor you’re not a hypochondriac but just a very sick young person is so much more exhausting to me than any of the conditions I have.

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    • wise

      713d

      the burnout will pass. doing your own research is not the horrible thing doctors try to make it out to be, they're just mad that now anybody can gain the knowledge and experience they had to go hundreds of thousands of dollars into debt for. some doctors will be extremely grateful for your knowledge of your body and how your symptoms are affecting you, and some doctors will get angry (read: insecure) that you think you know as much as they do (a claim you never made, but they'll act like you did as you spit on their degree). sometimes throwing yourself into it and/or centering your life around personal research can help with accepting that this IS your life now, you just have to get through the initial burnout

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    • Lunarix

      713d

      I feel ya. Sometimes I just keep going because I seriously have no idea how to stop. Or I'm too stubborn to idk. Finding someone who understands or is willing to understand and listen has honestly been the best thing for me. That and hunting down doctors who might understand my situation better

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    • Steph08

      713d

      I feel the same way. I feel like it is affecting my life and there’s nothing I can do to stop it.

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      • coffeequeen

        713d

        @Steph08 all i can suggestnis tske one day at a time one hour or min if u have to. Try to be kind to yourself and make sure to do selfcare . Find things that spark joy to help u through the darkness

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    • Lbags

      713d

      Just remember there are better days coming🙏🏻🙏🏻🙏🏻 I cleaned yesterday and now I’m hurting , feel like I have the flu 😷 god give us strength

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      • coffeequeen

        713d

        @Lbags I always end up pushing myself too far when I do feel good enough to do stuff because I want to get as much done as I can while my body lets me. Same thing happens to me the next day sometimes it ends up being a few days even a week of flulike symptoms

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    • zarmina

      714d

      Let's remember to put God first, when I can't get relief from big pharma, I turn to prayer, and hard work, something to strengthen my body, it takes the mind from the body, into the getting back to yourself. Moving, cleaning, even if you don't feel like it. I'm hurting and in pain anyway, I may as well get up and do something, whatever it is, just keep moving.

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      • carebear73

        713d

        @zarmina sometimes I feel good when I accomplish something but then I realize I have more to do and get overwhelmed

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        • coffeequeen

          713d

          @carebear73 same ✋

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      • coffeequeen

        714d

        @zarmina i agree sometimes i force myself to get up and do housework and i usually feel accomplished alittle atleast afterwards , until it gets dirty right after i do it

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    • hazyeclipse

      714d

      I've been feeling the exact same way. I feel trapped and overwhelmed. I'm sick and tired of feeling sick and tired. And I'm so bored with life. It's just nonstop suffering, and monotony that comes with these limitations. I'm a prisoner in this crappy, absolute dumpster fire of a body

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      • coffeequeen

        714d

        @hazyeclipse im so sorry and i can definately relate to being trapped in a body that just fails u time after time

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    • carebear73

      714d

      Thanks @coffeequeen. Most of the time I feel like I have no one to talk to. My husband doesn't understand. I just want to crawl in a hole and hide.

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      • coffeequeen

        714d

        @carebear73 same here 😥

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    • carebear73

      714d

      ❤️ feeling that way too. Not sure what to do

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      • coffeequeen

        714d

        @carebear73 hugs to you

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      • coffeequeen

        714d

        @carebear73 im sorry u can relate please feel free to vent anytime or if u have any questions im an open book ❤️

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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