JMS

134d

I feel like I'm the only person in the country who suffers from severe CFS and Conversion Disorder. I'm dependant on a motorized wheelchair outside of my small studio apartment and I'm struggling to survive. On Monday, the 26th of September, I will be having surgery to remove my gallbladder and I'm very afraid of how badly my body will react to that much trauma. It is out-patient surgery and I will be going home the same day to take of myself and I don't think I will be able to do it. I am so alone. 😞

Myalgic encephalomyelitis/ Chronic fatigue syndrome (ME/CFS)

Conversion Disorder

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  • Bihochic

    134d

    ❤️

  • sstorm

    134d

    Oh honey, I'm sorry you're feeling this way. The problem with these invisible conditions (besides stupid ppl) is the feeling of defeat. I feel it all the time & throw my hands up saying 'I'm done' on a regular basis. But I promise you've got this. I really hope there is someone in your life to be your support system. Sending you lots of positivity & love

  • Lollyr

    134d

    🙏you can do it. Stay optimistic. I also had mine out. Take care🤍

  • highonfaith

    88d

    Believe me you are not alone. I belong to several FB groups for CFS/ME. There are sadly many of us like you and me. I cannot walk anymore either and rely on an electric wheelchair to get around. I'm 90% housebound. And 70% bedbound. And I feel your pain. You are validated. 💔♥️💔

  • MommaPerson

    88d

    Of my numerous surgeries, having my gall bladder out was the easiest. And I had mine removed a month after giving birth. You can do this! And we will all be here for you.

  • Amberd19

    35d

    Had mine out in October, and I’ve been pretty much disabled since. I can’t wake up, I can’t do anything physical, I can’t sleep at night, and everyone hates me because of it.

  • JMS

    34d

    Thank you all so much for the validation and encouragement! The surgery went well and I am fully recovered. I'm still adjusting to the dietary changes but it wasn't too bad. Now I'm facing knee replacement surgery in February. That has me much more concerned since it is major surgery that will require me to stay in a rehab center for a couple weeks.

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