Struggling with Sleep and Epilepsy

I go to one of the best Neurological facilities in Tennessee. I travel for 4hrs to see them. It's my medicine that makes me the most tired, and we keep trying to find the best combo. I've had brain surgery, and it didn't work. So, now, I'm just always tired, and nobody understands that. I've been with my boyfriend for almost 8 years, and he, like I said, just doesn't believe my exhaustion.

Hi so do to struggle with sleep. I learned can only sleep an hour at a time. Wake urself up to advoid having sezuires in sleep . Maybe ur man not right person if getting mad at u for being tried and lazy. I live with my parents. But my boyfriend respects me and my sleep habitats and supports me. Find people who u can help support u. Best of Luck.

Well, that's made me angry. I think it's not an awful idea to tell him to pull an all nighter and restrict his caffeine. It might help him feel what you experience, at least physically. Has he ever been around you when you've had a seizure? If not, have him watch videos of people having them. I'm fairly sure it's worth you being pretty tired to avoid that. Honestly, I am anxious when I get in bed because sometimes the world spins. So I don't sleep as much as I should, but I'm too worried about stressing out my family. I lie and say it's allergies if they notice me rubbing my eyes.