418d
Does anyone from the UK know any good charities or healthcare / doctors that know about hEDS and could help me with a diagnosis and support? I've been waiting just over 4 months now for an "urgent" rheumatology referral and honestly I'm loosing any remaining hope lmao I've been in a ton of pain recently, tonight was probably the worst it's ever been, to the point I'm going to make an urgent call to my GP tomorrow even though I don't think they can really do much, I'm just that desperate at this point lol. I've taken Naproxen and Cocodamol throughout the day today just to cope with walking and actually doing everyday tasks and have taken amitriptyline tonight since it's been so unbearable. Honestly surprised I can still be in pain with these main painkillers in my system lol!!
Ehlers-Danlos Syndrome (EDS)
Amitriptyline
Chronic Pain
Naproxen
Codeine
Generalized pain
Hypermobility Syndromes
Codeine
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One user mentioned reaching out to an EDS specialist in the Oxford area privately for a diagnosis. While specific charities or healthcare providers are not mentioned in the provided context, you may consider discussing your concerns with your GP and asking for recommendations or referrals to specialists who have experience with hEDS.
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
palpitations
Depression
Valium
Bupropion
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