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ARose1

417d

Hi friends, I’m having an emotional day. I’ve been having a few great days, feeling minimal symptoms and pain and having energy to do things like take a short walk. I’m in red emotional though because it reminds me of who I used to be and I know this probably won’t last too long before I feel ill again. It’s like an evil tease! Does anyone else get emotional over this??? I’m sitting here with crocodile tears ☹️

Top reply
    • TrixNY

      417d

      I have struggled with feelings of resentment often lately. It can be on a day when I feel good or ill. For me, it has to do with most of this country not worried about Covid (or getting sick at all) and I still have to be so careful and isolated. I was diagnosed in 2018 and my symptoms were mild. Five years later, I’m on two immune suppressants and even my ‘good’ days involve some sort of joint pain or nausea. My friends are back to traveling and all the other things people enjoy, and I have my personal pity party wishing I could return to that life, too. I’ve had to change every aspect of my life for SLE, and it is totally understandable to mourn your old life.

    • TrixNY

      417d

      I have struggled with feelings of resentment often lately. It can be on a day when I feel good or ill. For me, it has to do with most of this country not worried about Covid (or getting sick at all) and I still have to be so careful and isolated. I was diagnosed in 2018 and my symptoms were mild. Five years later, I’m on two immune suppressants and even my ‘good’ days involve some sort of joint pain or nausea. My friends are back to traveling and all the other things people enjoy, and I have my personal pity party wishing I could return to that life, too. I’ve had to change every aspect of my life for SLE, and it is totally understandable to mourn your old life.

    • lozfod

      417d

      I know the feeling gone through the cycle many a time only thing Iv learnt is appreciate the pain free times and work through the hard times. It's hard but Ur harder and nothing is impossible to stand. God gives you the struggles so you know how strong you are and it makes the good times so much more worth it.breathe through the tears and laugh through the pain life is good when you know.🤗

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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