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Dealing with EDS and a Lump in my Thyroid

mazapaun

603d

just came back from seeing a new doctor.. he seems to know about EDS. unfortunately they found a lump in my thyroid... anyone else deal with both? seeing a different doctor tomorrow for a biopsy. ☹️🥲😓

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4

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Ehlers-Danlos Syndrome (EDS)

Hyperthyroidism

Postural Orthostatic Tachycardia Syndrome (POTS)

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    • KoiPond

      601d

      I have Hashimoto thyroid (which is easily missed on standard labs and occasionally missed even on the microsomal antibody tests if its not active at time of testing) and I get nodes (bumps) on part of the thyroid gland all the time. Comes from scar tissue build up from auto immune. For me they are a non issue. I take replacement synthroid. I am also an hEDS-er and POTS.

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    • KoiPond

      601d

      I have Hashimoto thyroid (which is easily missed on standard labs and occasionally missed even on the microsomal antibody tests if its not active at time of testing) and I get nodes (bumps) on part of the thyroid gland all the time. Comes from scar tissue build up from auto immune. For me they are a non issue. I take replacement synthroid. I am also an hEDS-er and POTS.

      1

      Reply
      • mazapaun

        601d

        @KoiPond thank you for sharing! hoping mine isn't anything serious. i have a family history of cancer, so hoping my lump is nothing!

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    • katehall

      603d

      I imagine this feels alarming and a bit discombobulating. Good for you for facing something that is scary and getting checked, and making 100% sure with a biopsy. Wishing you lots of support and care!

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      • mazapaun

        603d

        @katehall i needed this 🥺 thank you 🫶🏻

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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