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Newly Diagnosed with UC: So Many Questions, No Answers

Teema

489d

I’m newly diagnosed (or almost diagnosed) with UC. Flare up started in the beginning of October and while I’m feeling a lot better now it just feels like there’s a million questions I can’t get answers to. I don’t even officially have a doctor assigned to me yet! I had a quick visit to get established with the practice, a colonoscopy, a calprotectin test, I’ve been prescribed a medication that I haven’t started yet. It just feels like I haven’t really been able to talk to anyone.

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Ulcerative Colitis (IBD) Inflammatory Bowel Disease

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    • SlipSlide

      489d

      So glad you reached out! I can’t imagine how you must be feeling right now; I’m sure your mind must be swimming at times as you adapt to this new diagnosis and try to figure out what life is going to look like now. I’ve had ulcerative colitis for about 24 years at this point, and it’s definitely a journey. Two sources that are very helpful are the Crohn’s and Colitis Foundation’s website, and the new Crohn’s and Colitis for Dummies book (not that you’re a dummy; just the name of the series of books 😊). These can help answer a lot of questions you have with your new diagnosis, and can also help connect you with support groups. We’re here for you as well!

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    • SlipSlide

      489d

      So glad you reached out! I can’t imagine how you must be feeling right now; I’m sure your mind must be swimming at times as you adapt to this new diagnosis and try to figure out what life is going to look like now. I’ve had ulcerative colitis for about 24 years at this point, and it’s definitely a journey. Two sources that are very helpful are the Crohn’s and Colitis Foundation’s website, and the new Crohn’s and Colitis for Dummies book (not that you’re a dummy; just the name of the series of books 😊). These can help answer a lot of questions you have with your new diagnosis, and can also help connect you with support groups. We’re here for you as well!

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      • Teema

        489d

        @SlipSlide oh my gosh I love the For Dummies series haha I never knew they covered something like this! I’ve been looking into local support groups too, it just has felt like I have a new question every day.

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        • SlipSlide

          489d

          @Teema It’s a great series! Make sure you get the updated version (I think it is 2022 version). And yes! I’m sure you have so many questions! A support group is a great place to start, but I understand you can’t quite always reach out to them daily for questions! The Crohn’s and Colitis Foundation also has a great program called the Power of Two, which is a great peer-to-peer mentoring program!

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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