Struggling with Pain and Guilt

All the time!

Diddo ✋

All the time!!!

Almost every day

I think a large majority of people that are dealing with the disease and symptoms we experience feel that way a lot. It's definitely something I have, and continue to have to wrestle with. One of the most difficult things for me is sleep. I don't sleep well because of pain and insomnia. However, the less I sleep the worse I feel. Lack of sleep also puts me at higher risk for seizures. My boyfriend forced me to prioritize sleep and taking naps when necessary. The guilt is tough, but if you don't prioritize your health, you can't be any good to others. I think it's important that the people in our lives understand that as well. I wish you luck and better health. If you need to talk I'm here. ❤️

Often