I joined this app because I feel mostly alone when it comes to my plethora of medical problems. I am very knowledgeable about most of my conditions based on research, self experience, and others experiences. I guess I just need people to lean on some times.
3 months ago I had a major surgery. I had a very large hernia that I couldn't get repaired for many years and because of this hernia I was made to suffer with uterine fibroids, wall thickening, and heavy periods because no one would work on me because of the hernia. I also had gall stones and was gaslighted that it was fine. When I finally found a surgeon that would fix my hernia, we also needed to remove my gall bladder and a complete hysterectomy. Some time during the surgery or immediately after, I had a heart attack. The doctors hid it from me and I only found out because I read my reports and my ekg was abnormal and I had a septal infarction! They said and did nothing. I told my primary nurse and she repeated the ekg and had the same result. Now I have to wait for the VA to do more testing. It's been over a week and they still haven't called to do anything about it. I truly believe the VA wants to kill me. So many things they don't take care of.
Are you diagnosed with a special syndrome ? If yes what was is that and how they diagnosed ?
I had LDS and bunch of disease such as hernia, scoliosis, kyphosis, and heart disease but they didn't diagnose the syndrome till I get a genetic test results
no, I don't have anyone that bothers to look into more and I have found that if I have a possible diagnosis, they get annoyed. I've had doctors fire me because they don't believe me.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
JaimeJ
14d
I joined this app because I feel mostly alone when it comes to my plethora of medical problems. I am very knowledgeable about most of my conditions based on research, self experience, and others experiences. I guess I just need people to lean on some times.
1
4
Share
Acute Myocardial Infarction (MI)
Crohn's Disease (IBD) Inflammatory Bowel Disease
Ischemic Heart Disease (IHD)
Chronic Low Back Pain
Arnold-Chiari syndrome
Michele
14d
0
Ardee
14d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision