Frustrated with Medical Professionals

Yes. You have to be your own advocate. Ask for referrals to specialists.

Are there any good pcp s

Yes I feel like that right now. At the moment my whole body abdomen, back, chest and sides, neck and shoulders all feel like it's bruised I also feel nauseated and vomiting feeling I hate it

I’m in the same boat. My mom reached out to one of my doctors and asked him if he thought Fibromyalgia was a possibility since no tests have been showing anything and my symptoms are pretty similar but he said that he “Is skeptical around Fibromyalgia since it’s easy to diagnose.” I’ve also been having weird stomach issues but no tests show anything either and it feels like they’ve just given up on me.

That’s a bigggg plus to have everyone right there together. 🙌 but that’s how I am I have been giving muscle relaxers and something for muscle spasms.. but for years doctors have been trying to give me opioids but I refuse… marijuana is illegal here in Georgia but I still use it often.. I’m trying to get a medical card but when I research it it seems like even those with medical cards have a hard time getting it,

I’m lucky in that my providers are all in one building, PCP and specialists, so it’s easy in that respect. It was rheumatology that said I’m negative for everything but fibro, and pain management keeps putting me on muscle relaxers instead of things for joint pain. I do see neurology for migraines so I could pay them another visit. I also see Addiction Mgmt for medical mary-j (since in NY you can still only get it with a card right now, at a dispensary, even though it’s legal now) and Pain Mgmt suggested maybe they could give me narcotics as a last last resort. But like…just give me some Humira, damn. But honestly, the most helpful provider I’ve seen, the one who has listened the most and tried to do the most for me, is my podiatrist, and he’s very limited in what he can do. 😩😩

Vanta, my primary care doctor referred me to neurologist because she actually said herself she thinks it more than fibromyalgia. She actually thought I had lupus. She was the second primary care doctor to say this but the rheumatologist said nope.. it’s fibromyalgia. Since I wasn’t deficient in anything vitamin wise she thinks it neurological.

Well, I really think I’m starting to experience early onset RA or Lupus, because it’s my joints that are killing me, like… all of them. And it’s just starting to get worse. But the most I’m getting is a few localized OA diagnoses here and there because the tests are coming back negative. They won’t even consider seronegative RA, even though my grandfather and mother both have it.

Same.. even with simple things like holding my head back to look up.. I get extremely light headed and dizzy .. close to falling out.. and a host of other things,

I’m right there with you. I have strange sensations that just don’t feel right in my body too. My heart feels like it flips when I have a “flare up”. I think one of the biggest challenges is finding a doctor who will listen and think outside the box to help. Have you explored integrative medicine? What type of symptoms are you having that don’t feel right?