Dealing with Autonomic Dysfunction: Seeking Help and Suggestions

It takes time to adjust to having these sx. I got zero help from doctors after dx. I was hospitalized for 5 days, then underwent testing of all sorts. They seemed to want to prove I didn’t have it - but I’d end up passing out after the tests while still at the hospital, or having serious issues while out at store, etc. All the drugs they gave me made me worse. I had to investigate options on my own and eventually, I got things figured out. Things that helped me list: drinking 64oz minimum of water daily, cutting back on caffeine, stopping all of those SSRI/SSNRI drugs (that weren’t doing anything) and actually CAUSE dysautonomia symptoms, wearing a custom mid-rib hip length corset (and not the lame medical “binder” recommended, eating things with salt (I did take salt tabs for about 6mo), taking metoprolol (regulated BP b/c it was sooooo labile, found a minimal weight bearing exercise (aerial yoga) that increased the “tone” of my vascular system, stopping worrying all the time and accepted that I would feel like shot sometimes. I’m WAY better now than I was in 2012 - took several years of adjusting things. I have issues every now and then - but I know it’s temporary and I know how to handle them.