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Does anyone think that they have a worse condition besides FM, such as lupus?
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Fibromyalgia (FM)
Systemic Lupus Erythematosus (SLE)
Diffuse connective tissue disease
Celiac Disease
Chronic Pain
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93d
@Michaelar1 Like the above comment said there have been some really interesting studies recently and many specialists and researchers are now trying to get it classed as an autoimmune/nerve disorder so fingers crossed in a couple more years we will actually be taken seriously š
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My fibromyalgia was caused by a genetic condition called ehlers danlos and I ended up with the trifecta eds pots and mast cell activation
683d
I've been told that I don't have lupus as of now, but that I'm susceptible to developing it. my rheumatologist is keeping a close eye on it, so who knows
I've been tested for every autoimmune issue. I DO have Celiac disease (diagnosed 10 years before I started having FM symptoms) and having an autoimmune disease makes you 25% more likely to have another one later on. So it's possible that IF FM isn't an autoimmune issue I might have one and it was just undetectable...
I'm pretty well convinced fibromyalgia is an autoimmune disorder even though medical field says differently
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@MystikMandy there are actually studies that came out in the last few years that are pointing in that direction. They just can't pinpoint EXACTLY what the immune system is attacking (although it's likely the nervous system.)
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Yes and getting a doctor to take me serious is a joke, so now I'm hurting real bad and over the counter meds dont work and can't.get to doctors until the 17 th of june
@Grace87 I hope this doctor is more respectful chronic pain is no joke
@Grace87 I know you get answers
I was being tested for lupus it was positive once itās a hard disease to pinpoint as of now we are thinking it more spine stuff I have AS
This is a big fear of mine. I have been diagnose since 2002 and treatments that worked in the past no longer work - so I wonder if I need to be re-evaluated to see if something has change.
I just learned that a lot of mine is actually caused by a spinal deformity! Hopefully when I fix that, most of my symptoms will go away. Donāt stop looking for answers!
I have gone to so many doctors because I'm not satisfied with that diagnosis. I was referred to a rheumatologist. She was amazing and tested me for a whole panel of autoimmune disorders. I'm negative lol. Next step is genetic disorder testing.
I wonder that all the time. It is a constant fear of mine. I'm even thinking of changing doctors to get "re-diagnosed"
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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