Possible Rare Disorder: Arachnoiditis

🤗 Hi Hinny, Let me start by saying I’m sorry you have so many medical issues. I understand, really! As I too, have ALL of those that you have named and sadly, many, many more. Additionally, I do not know about the condition that you mentioned -that your doctor does not know about either, so I will have to look that up and see if there’s any relevance to my bodies condition? I hope u find answers too. Since Covid-19 , in just 2 yrs, I’ve had a total of (5) surgeries! (2) within 8 days! Emergency Gall Bladder surgery= that was EZ!, then (4) back surgeries in total! (3) (L4-S1) TRIPLE Spinal Fusions + a Spinal Cord Stimulator implanted last Nov ‘21, of which I have not YET, received any relief from the SCStim. 😟 however, I CAN stand now, bc of the (3) other back surgeries. Drs. Said I “broke a titanium screw”!??! On the 2nd surgery, Hence, the 3rd Triple Spinal Fusion But, I’m still in chronic pain and on pain reliever, “Nucynta” which does HELP, since I’m allergic to many typical pain pills 💊, I would give Nucynta a 👍🏽👍🏽👍🏽 if u haven’t tried it? Also, I need (2) SI, replacement? Injections have NOT helped, so both hips are also whack. *A few other *FUN* conditions that I have: *Fibromyalgia, *Hashimoto’s Thyroiditis, *BiPolar 1*, *High Cholesterol, *Vitaligo, = no biggie *CREPITUS=, old bones🥺, chronic crack & aches (got that at age 9!!) *ADD 🧠 *Severe Sleep Apnea, * Degenerative Disc Disease *TRAUMATIC BRAIN 🧠 INJURY AND THE ABSOLUTE WORST OF ALL OF THESE ISSUES,… ########################## *RLS…. Yep, that damn, Restless LIMB Syndrome kicks my ASS Every time!!I nearly EVERY /day/night! It can happen at ANY TIME?!! I get 1-2 limbs vibing that “twitch” up to 10x/min!! It does NOT hurt! Yet, I wish it did, bc then I could take a pain pill for it. Instead, my whole body/world is turned upside down! I can NOT Sit, Stand, Lay down, eat, read, **I Can’t do ANYTHING,** but allow my body to go thru its wicked convulsions In my limbs. I take Mirapex, and have added a miracle drug, (Carba-Dopa- LevoDopa) ( Parkinson’s Rx! ) —of course, my sleep Dr. Wants me OFF Carbo/Levo dopa— That’s not gonna happen!! It helps but does not stop or cure these Exhausting and violent kicks/punches from what feels like building energy Within my body. I will reiterate, of ALL of these Diseases/illness RLS is the absolute Worst! I’ve had (6) in hospital Sleep studies. 6??!!, Anyone out there Have RLS-violent kicks/punches?? TBI?? I would GLADLY take Fibro, Back & Neck Surgeries, Traumatic Brain Injury, ADD, DDD, Hashimoto’s, Severe Sleep Apnea, just to rid my body of RLS! My Drs. Just Don’t Understand, how debilitating RLS truly is. 🙏 😥 All the women my family also had RLS, any words of wisdom?? Gracias 🙏🏾