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777d
Anyone else try to avoid telling others what your condition is for fear they will look it up and see the absolute worst case scenario? It’s clear I don’t walk like others and when asked I just say birth defect, No one but my family knows I have SB. How do you guys handle this question?
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Spina Bifida (SB)
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457d
I used to dread having someone ask me, "Why do you walk like that?" When I was younger, I didn't have an answer to that question. Now that I do, I don't dread those kinds of questions anymore because it gives me an opportunity to be insightful.
0
502d
When I tried talking to people and they haven’t continue the conversation I kind of figured they have already looking up my medical demons (lack of a better words) already. 😏
501d
@Tracks what did you say to them?
500d
@Gemini43 just normal chitchat you know I guess they’re not interested in continuing the conversation so I’m just assuming they looked me up. I’m not sure really what I said.
507d
I’m opened and honest
571d
I tell ppl so they can be aware if i get hurt or need the hospital
702d
If I trust em I tell em everything if I don't I just say I had a car accident
738d
It honestly depends on context of who im telling but i tend to be very open about my SB but when I was younger and started dating I definitely held off the topic from fear of being judged
740d
I very rarely say it by name and usually just describe the symptoms
749d
Hi I'm 27 yrs old and I was born a spinal bifida and I use to be very insecure about my condition but now I'm very comfortable with talking to people about my condition and my experiences
1
774d
That’s a good question. I usually say that I have a few problems with my spine since birth. If they keep digging then I explain about the mechanism. I usually don’t use the name spina bifida
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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