Hi guys I’m trying to get a diagnosis for pots and it’s seeming to be a nightmare
Postural Orthostatic Tachycardia Syndrome (POTS)
There is a dysautonomia international website with doctors listed on it! Try one closest to you! Good luck!
I will have a look thank you x
Neurologists or cardiologists are your best bet probably. Just a heads up, a diagnosis may take a couple years. Good luck
Getting a diagnosis is a pain, I’d say a cardiologist is a good bet but don’t let them push you around, stand your ground and advocate for yourself a lot of doctors are very good at not giving you a diagnosis, if you don’t mind what symptoms do you have?
I have my heart rate race from roughly 80 to 130 when I stand, passing out, dizzy really struggle with strenuous activities as I lose my breath quickly. Lose sight and hearing before passing out, struggle with hydration no matter how much I drink, all my tests (x-rays and blood tests) come back normal, tremors, tingling hands and nose when stand up, extreme headaches when I stand too quick and extreme fatigue
this sounds more like hyperadrenergic POTS so maybe ask about that, some of the symptoms aren’t “regular” POTS but could be POTS and a neurological disorder. Good luck!! 💗
100% agree. I was with specialist cardiologist who gave me medication for pots but told me there was no point in diagnosing me. It took 6 years of asking for her to finally give me a diagnosis
I have a great cardiologist thankfully. I remember seeing an electrophysiologist who did not take me serious at all. So I told my cardiologist he pondered what could be causing it. He came up with POTS. He sent me for a tilt table test and I passed out during the test for a positive diagnosis. You just need a cardiologist who will humor you and send you for a tilt table test.
So I don't technically meet the criteria for POTS, but I do have some form of dysautonomia (unknown type but it doesn't matter for treatment). I'd suggest seeing an electrocardiologist (cardiac electrophysiologist).
I was diagnosed by a cardiologist and I had to be very insistent on having a tilt table test.
I was diagnosed with a tilt table test. Thats like the Golden criteria for pots diagnosis.
Tilt table test is generally the easiest way to get diagnosed but it’s certainly not a fun experience. Electrocardiolost or a clinical pharmacologist are the best with it in my experience but everyone has a different one 🤷
What have you tried so far in terms of trying to get a diagnosis?
not much at the moment just trying to get an idea of what’s the best way to go about it
Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.
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