Getting a diagnosis is a pain, I’d say a cardiologist is a good bet but don’t let them push you around, stand your ground and advocate for yourself a lot of doctors are very good at not giving you a diagnosis, if you don’t mind what symptoms do you have?
I have my heart rate race from roughly 80 to 130 when I stand, passing out, dizzy really struggle with strenuous activities as I lose my breath quickly. Lose sight and hearing before passing out, struggle with hydration no matter how much I drink, all my tests (x-rays and blood tests) come back normal, tremors, tingling hands and nose when stand up, extreme headaches when I stand too quick and extreme fatigue
this sounds more like hyperadrenergic POTS so maybe ask about that, some of the symptoms aren’t “regular” POTS but could be POTS and a neurological disorder. Good luck!! 💗
100% agree. I was with specialist cardiologist who gave me medication for pots but told me there was no point in diagnosing me. It took 6 years of asking for her to finally give me a diagnosis
I have a great cardiologist thankfully. I remember seeing an electrophysiologist who did not take me serious at all. So I told my cardiologist he pondered what could be causing it. He came up with POTS. He sent me for a tilt table test and I passed out during the test for a positive diagnosis. You just need a cardiologist who will humor you and send you for a tilt table test.
So I don't technically meet the criteria for POTS, but I do have some form of dysautonomia (unknown type but it doesn't matter for treatment). I'd suggest seeing an electrocardiologist (cardiac electrophysiologist).
Tilt table test is generally the easiest way to get diagnosed but it’s certainly not a fun experience. Electrocardiolost or a clinical pharmacologist are the best with it in my experience but everyone has a different one 🤷
Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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beartuck
16d
Hi guys I’m trying to get a diagnosis for pots and it’s seeming to be a nightmare
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Postural Orthostatic Tachycardia Syndrome (POTS)
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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision