beartuck

16d

Hi guys I’m trying to get a diagnosis for pots and it’s seeming to be a nightmare

Postural Orthostatic Tachycardia Syndrome (POTS)

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  • Aly24

    16d

    There is a dysautonomia international website with doctors listed on it! Try one closest to you! Good luck!

    • beartuck

      16d

      I will have a look thank you x

  • NewYork

    16d

    Neurologists or cardiologists are your best bet probably. Just a heads up, a diagnosis may take a couple years. Good luck

  • Holz

    16d

    Getting a diagnosis is a pain, I’d say a cardiologist is a good bet but don’t let them push you around, stand your ground and advocate for yourself a lot of doctors are very good at not giving you a diagnosis, if you don’t mind what symptoms do you have?

    • beartuck

      16d

      I have my heart rate race from roughly 80 to 130 when I stand, passing out, dizzy really struggle with strenuous activities as I lose my breath quickly. Lose sight and hearing before passing out, struggle with hydration no matter how much I drink, all my tests (x-rays and blood tests) come back normal, tremors, tingling hands and nose when stand up, extreme headaches when I stand too quick and extreme fatigue

      • Brokenbodyclub

        15d

        this sounds more like hyperadrenergic POTS so maybe ask about that, some of the symptoms aren’t “regular” POTS but could be POTS and a neurological disorder. Good luck!! 💗

    • Fawwn

      15d

      100% agree. I was with specialist cardiologist who gave me medication for pots but told me there was no point in diagnosing me. It took 6 years of asking for her to finally give me a diagnosis

      • beartuck

        14d

        it’s ridiculous

  • DieselWeasel

    15d

    I have a great cardiologist thankfully. I remember seeing an electrophysiologist who did not take me serious at all. So I told my cardiologist he pondered what could be causing it. He came up with POTS. He sent me for a tilt table test and I passed out during the test for a positive diagnosis. You just need a cardiologist who will humor you and send you for a tilt table test.

  • outpickingdandelions

    15d

    So I don't technically meet the criteria for POTS, but I do have some form of dysautonomia (unknown type but it doesn't matter for treatment). I'd suggest seeing an electrocardiologist (cardiac electrophysiologist).

  • Ellis_b

    14d

    I was diagnosed by a cardiologist and I had to be very insistent on having a tilt table test.

  • Paperheartz

    14d

    I was diagnosed with a tilt table test. Thats like the Golden criteria for pots diagnosis.

  • Alicat07

    13d

    Tilt table test is generally the easiest way to get diagnosed but it’s certainly not a fun experience. Electrocardiolost or a clinical pharmacologist are the best with it in my experience but everyone has a different one 🤷

  • chocolatetruffle

    13d

    What have you tried so far in terms of trying to get a diagnosis?

    • beartuck

      11d

      not much at the moment just trying to get an idea of what’s the best way to go about it

  • pink_sky

    9d

    Cardiologist is definetly your best bet at getting a diagnosis. I was diagnosed with a tilt table test, it's probably the best test for POTS available.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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