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709d
Looking for anyone else trying to manage HHT in their life and what has helped most, specifically staying on top of anemia.
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Anemia
Hereditary hemorrhagic telangiectasia
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504d
I unfortunately don't absorb oral iron, so I have to have iron infusions done whenever I get low. If you're like me, I'd say the best bet is to advocate for getting your labs done on a somewhat regular basis so that you can catch a drop early.
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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