Belugabear

255d

Does anyone ever feel like they’re faking it? Especially on my good days it feels like oh maybe I am actually fine and these past several years have all just been me being dramatic. On my bad days I know that’s ridiculous but it’s hard not to feel that way. Can anyone relate?

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  • Lilac_Night

    255d

    Absolutely. Just today me and my sisters and mom were walking in a store for a long time and I started sort of limping because my ankle and leg began to get really bad pains and then they started looking at me funny.....like i wouldn't limp for fun im in real pain its just an invisible illness

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    • Belugabear

      255d

      I had to wear a neck brace briefly just because of a chiropractor appointment so I wouldn’t mess up my adjustment and it was kinda nice having a physical symbol of my invisible illness, people held doors and things like that and it was really helpful!

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    • dublyn

      252d

      I was accused of faking more than once, especially before my disability was approved. I like to tell people to be glad they don't understand

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      • Belugabear

        252d

        ugh I’m sorry that’s horrible! I’ve had doctors do that and it’s just the worst

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  • MJ17

    255d

    Yes. It’s the worst. I have to use platform crutches every day and I still feel this way

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    • Belugabear

      255d

      people don’t get that we don’t want to do things like use mobility aids, but we have to!

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  • BumbleBees

    255d

    10000%. I even get told it’s not as bad as I say it is! I was able to buy a cane and it’s helped being able to SHOW my pain now. I hate when I have good days because it feels like maybe I am over exaggerating. I have to sit back and realize my usual day is walking with a cane or wearing braces to protect my joints, so I’m not being dramatic

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    • Belugabear

      255d

      yeah when I have a physical symbol of my pain it’s better. Good days are great but also kinda suck for sure!

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  • dublyn

    252d

    Just had the same thought the other day. Then I did too much and the next day I was reminded of just how real it is

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    • Belugabear

      252d

      yep I always do that

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      • dublyn

        252d

        you would think we'd learn

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