Stories
Privacy
Download
See Alike in...
Alike App
Browser
683d
Hi I’ve been diagnosed with ANCA Vasculitis that has caused RPGN kidney disease!! Does anyone deal with Vasculitis and how are you doing??
0
2
Share
Arteritis, Vasculitis
advertisement
676d
That's just it. I just take it day by day. Some worse than others. My antibody assay, myeloperoxidase result was 184(normal0-19). P-anca pattern. Not sure if this means anything to you. My nerologist calls it a positive vasculitis test and sent me to my rhematologist. She has done nothing. I've been waiting for three months to get into a doctor second opinion. From what I read I need biopsy done and treated in order for any hope for remission. How long did it take for your diagnosis and what should I be asking to be done? My kidney doctor does not want to do a kidney biopsy because I have kept my kidneys stable for 3 years at stage 3 and they fear a biopsy could do more damage. Thank you for any thoughts.
1
@lac I was diagnosed with RPGN with a creatinine of 8, nephrologist had to do a biopsy to confirm this. I was told Vasculitis ANCA was the culprit. I don’t 100% know about it, but I know I’m hurting back, hands and knees. I took Rituximab infusion to help put me in remission. It’s given every 6 months
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Write your question here...
Download Alike for the full experience
Copy Link
Copied
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
4.7 Ratings
Scan code or click below download the app
Bupropion
night sweats
paranoid
Valium
sertraline
palpitations
Anxiety (Including GAD)
Depression
Alike health
Instantly get answers to medical questions with our AI, built from the collective wisdom of our community facing similar experiences
Related Questions