WallyWasTaken2

286d

I'm so tired of being tired. I've had to change medications a lot due to my liver refusing for anything to process through it, which means I've had to reset my own boundaries with myself, life, and other people again and again and again and again when it comes to how much energy I have to give each day. it's exhausting. I feel like every time I finally get it figured out, something changes and I'm right back where I started. I'm just so tired all the time. I wish it was a sleep-kind of tired so I could rest.

Cataplexy & Narcolepsy

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  • AlPal1993

    285d

    I can 100% relate. So sick and tired of being tired AND having to switch meds every month. I try a med it works for 3 days and then it stops. I’ve tried every single stimulant and after only a couple days, I’m falling asleep while doing literally anything. Trying wakix pretty soon which I’ve heard so much great stuff about, especially because you cannot build a tolerance to it like all the medications I’ve tried and failed. Trial and error my doc says but when do we stop the error??

    • Poeticlycorrect

      285d

      I will be switching to Wakix soon too after a terrible reaction to my Xywav sent me to the hospital last night. I understand the frustration.

      • AlPal1993

        285d

        funny story how I got the wakix prescription…my insurance wanted me to try it before them covering Xyrem which I was prescribed first lol. I tried Xyrem for a month a while ago and it worked wonders but my insurance was no longer going to be covering it. So I’m praying the wakix works but if not I’ll be back on that I guess. It’s just so difficult bouncing around I really wish something would actually work!

  • Poeticlycorrect

    285d

    I totally understand this... I am having to change everything after finally feeling like I found something that works. It's a constant growing and learning kind of situation. And an exhausting one.

  • AlPal1993

    285d

    I’m her first patient she’s prescribed it but she has a patient who came to her already on it and I guess they’ve never felt better 🤞🏻

  • AlPal1993

    285d

    I hope you have success with it too

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