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I have fistulating crohns and its gotten to the point the treatment is not working and they're suggesting surgery đđ honestly very scared im only 18 and just wondered if anyone else has had to go through surgery before bc I am not sure what to expect / how it'll affect me
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Infliximab
Azathioprine
Crohn's Disease (IBD) Inflammatory Bowel Disease
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483d
hiya, 19 y/o here. i had resection surgery for multiple intestinal strictures in march â21 - i now have an ileostomy. itâs been 10+ years with crohnâs and surgery was introduced as a last resort after trying every medication available. it was very sudden for me and i barely had time to process until after the fact. i know surgery might feel far-fetched or even impossible for you right now, but you can do it. im not sure the exact details of your surgery or crohnâs (feel free to msg me) but iâm sure your team wouldnt suggest surgery if it wasnât appropriate i would suggest asking your doctors for an explanation that splits surgery itself into three stages (pre-operation, surgery and recovery) to help you understand and stop it feeling so surreal. my surgery has left me completely pain-free after so many years of struggling with my symptoms. iâm able to live a bit more for myself now. i really do wish you all the best, and if you need anymore help feel free to reach out. - han
Hii, Iâm 21 now but right after I turned 20 I also had really severe fistulizing Crohnâs. It was too far gone that although the Remicade was helping, it wouldnât fix anything and so I did have surgery. I had a bowel resection, part of my small and large intestine, as well as a temporary ileostomy. And Iâll be honest it sucked. It was really hard and the recovery is rough. But lemme also tell you that a year later, I still have the ostomy bag and Iâve never felt better. That surgery fr gave me my life and my health back and I wouldnât do anything differently. Iâm back in school and I mostly eat whatever I want and I have a boyfriend and friends who are so supportive. Listen, Ik itâs scary believe me especially so young but I can almost 100% guarantee that if surgery is necessary, itâs gonna save your life and put you back on your feet. Best of luck, Iâm on your teamđ
â This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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