Struggling with an Undiagnosed Autoimmune Disorder

What’s insulin resistant ? I have porphyria

So, my pain doctor thinks I have auto immune! Now what do you all suggest I do next!

I am a nurse and I hate our healthcare system. It's not about the patients. It used to be, but those days have passed

I’ve gotten a positive test for autoimmune but they don’t want to do further testing after the test they wanted to do were done. They won’t even send me to any other specialist.

Yes, I’ve been told by two specialists that I have RA. Then told by two others that I only have the RA factor but it’s likely something else. I also have the ankylosing spondylitis marker but the doctor needed an MRI to prove it. The MRI didn’t prove it but showed other issues. This has been a 16 year process and I still have no idea exactly what’s wrong with me.

Yup

Yes! I was first diagnosed with rheumatoid arthritis and sent to a specialist who said “oh no it’s just hyper mobility syndrome” and sent me on my way. Still in pain everyday without anything so just managing at this point 😅