MTB1960

205d

So when I go for my 1st NET bloodworkup
Gastrin and B12 will be checked
What will either high or low numbers show?
( no scans are recommended YET)

My Gastric NET was fully resected in Feb this year
Well differentiated grade 2 ( now upgraded from grade 1) :(

Ki67 5% tumor was 0.2 cm

Thank you for your answer

Chronic Heartburn

Neuroendocrine (Carcinoid) Tumors

Chronic Nausea and Vomiting

Diabetes Type 2 (T2D)

Chronic Abdominal Distention

View all
  • TriptychWitch

    193d

    I don't remember exactly what the b12 indicates, but high gastrin would show that you're making too much gastrin, which is the chemical that regulates stomach acid. Low gastrin would indicate you don't have enough. If you're making too much gastrin, it could be a recurring tumor causing it, and you might be experiencing nausea and/or heartburn because of it. Not enough gastrin could also cause nausea.

    • MTB1960

      193d

      Thank you for your response I was told high gastrin was typical in Type 1 GI NET

    • MTB1960

      193d

      my gastrin level was over 1900 :( I’m not to familiar with any of this and was the acid or lack there of means Do you have NET? Where is yours located ? How are you doing ?

  • MTB1960

    193d

    if you already have Atrophic gastric

  • TriptychWitch

    193d

    Yes, I have recurring NETs caused by a genetic disorder. Mine have been mostly in my pancreas. I have had two surgeries to remove them, and at the most recent surgery they also found a small metastatic tumor on my diaphragm.

    • MTB1960

      193d

      I have a metabolic disease ( genetic ) Aldo told my gastritis was genetic Does that seem to make it more of a reason for having NET/NEC ?

  • TriptychWitch

    193d

    I live a mostly average, normal life 95% of the time, and I'm doing fairly well. I do have diabetes caused by my pancreas surgeries and I have to go in for scans every 6 months to one year, but my symptoms don't affect my overall wellbeing for the most part. :)

  • MTB1960

    174d

    Are their any questions you can think of ?( to ask ) I see (via zoom )my NET specialist tmrw the 14th

    • TriptychWitch

      146d

      sorry I've been away so long... how did your meeting with your specialist go? How are you doing now?

      • MTB1960

        146d

        hi no problem I know we all have lives outside of the internet I’m just so new to this ( well maybe not as new as I was ) My b12 and intrinsic factor were normal but my anti parietal value was 3x normal I’m suppose to get a scan soon since I complained about stomach pain no rhyme or reason for it I’m also coming up on my 6 mth scan :( Are you doing ok?

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