So when I go for my 1st NET bloodworkup Gastrin and B12 will be checked What will either high or low numbers show? ( no scans are recommended YET) My Gastric NET was fully resected in Feb this year Well differentiated grade 2 ( now upgraded from grade 1) :( Ki67 5% tumor was 0.2 cm Thank you for your answer
Neuroendocrine (Carcinoid) Tumors
Chronic Nausea and Vomiting
Diabetes Type 2 (T2D)
Chronic Abdominal Distention
I don't remember exactly what the b12 indicates, but high gastrin would show that you're making too much gastrin, which is the chemical that regulates stomach acid. Low gastrin would indicate you don't have enough. If you're making too much gastrin, it could be a recurring tumor causing it, and you might be experiencing nausea and/or heartburn because of it. Not enough gastrin could also cause nausea.
Thank you for your response I was told high gastrin was typical in Type 1 GI NET
my gastrin level was over 1900 :(
I’m not to familiar with any of this and was the acid or lack there of means
Do you have NET? Where is yours located ? How are you doing ?
if you already have Atrophic gastric
Yes, I have recurring NETs caused by a genetic disorder. Mine have been mostly in my pancreas. I have had two surgeries to remove them, and at the most recent surgery they also found a small metastatic tumor on my diaphragm.
I have a metabolic disease ( genetic ) Aldo told my gastritis was genetic
Does that seem to make it more of a reason for having NET/NEC ?
I live a mostly average, normal life 95% of the time, and I'm doing fairly well. I do have diabetes caused by my pancreas surgeries and I have to go in for scans every 6 months to one year, but my symptoms don't affect my overall wellbeing for the most part. :)
Are their any questions you can think of ?( to ask )
I see (via zoom )my NET specialist tmrw the 14th
sorry I've been away so long... how did your meeting with your specialist go? How are you doing now?
hi no problem I know we all have lives outside of the internet
I’m just so new to this ( well maybe not as new as I was )
My b12 and intrinsic factor were normal but my anti parietal value was 3x normal
I’m suppose to get a scan soon since I complained about stomach pain no rhyme or reason for it
I’m also coming up on my 6 mth scan :(
Are you doing ok?
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
Scan code or click below download the app