MunchkinMinx

180d

I've been having a lot of issues thought my life, not entirely related to Cystic Fibrosis. I'm trying to figure out everything that may be going on because I can't seem to find a doctor that will help me or check out the symptoms I'm having.

Ex: Very bad stomach aches that can last for days,

Pains in my back that feel like air may be moving under my skin (weird ik, no one believes me until they feel it)

memory loss and trouble remembering things that happened recently and longer ago.

Chronic Memory Loss

Memory Loss

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  • Dom98

    180d

    Are you on Trikafta by chance? There’s a lot of memory side effects and stomach problems with it

    • MunchkinMinx

      180d

      I am! And it could be the reason for the stomach problems. However the memory thing has been going on for a lot longer than I have been in Trikafta. I wanted to get it checked out before, but my mom didn't believe me and thought it was an excuse to not do things. Now that I'm on my own though im struggling to get into any doctor but my CF specialist. And they keep recommending a primary care doctor. Which I've tried getting but there's not a lot of doctors near me.

      • Dom98

        180d

        I’m glad you got it! I’m sorry it’s causing issues. I’m sorry to hear you’ve been struggling for awhile with the memory and it’s hard to have someone help. I’m not sure what else could be done if the cf doctors are suggesting a primary. Can you ask your social worker through clinic for help? Or call your insurance and see what near by doctors they can recommend? It definitely sounds like you need referred to a neurologist. What cf center are you going to if you don’t mind me asking

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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