I was diagnosed with pots just a few months ago, still figuring out medications and a lifestyle that will work for me. I’m concerned that my doctor isn’t giving me the best treatment nor really taking my condition seriously and I’m very stressed out. Any tips?? Do you guys see a regular doctor or is there a specific type of doctor I could be seeing to help me manage better??

Postural Orthostatic Tachycardia Syndrome (POTS)

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  • Jihye525


    I think a neurologist might be helpful if you aren’t seeing one already, same for a cardiologist. The most important thing is that you work with drs that actually listen and want to help, if they either can’t or won’t find one who will.

  • randochikn


    I have a physical therapist. Surprisingly this one gave me a good exercise regimen that is already helping me build more tolerance. I also have hypermobility syndrome so they also have given me plenty of muscle building exercises to help with that. If you wish to look up what the exercsie regimen is its called the “Levine protocol” id discuss it with one of your doctors if you’re interested.

  • BirdMom


    If your lucky enough to find a cardiologist that understands POTS that can be a goldmine.

  • moon.stars.oceans


    • A cardiologist or/and neurologist. Those would be a good starting place. It’s really hard to find good doctors that treat your invisible illness as visible and serious. But they are out there, it’s just a matter of trial and error. Which is exhausting, but if this doctor causes you so much concern, then it’s probably not a good fit. You are your own advocate, your voice matters in this. • You deserve to feel comforted, not concerned, about the treatment and care. You can ask your doctor for suggestions of other specialists. That helped me some and online resources can provide easier ways to guide you. It’s such a crazy process, but I’ve walked through this, and certainly know you can too. Sending you love from a fellow potsie. ❤️

  • Emma37


    I went to a cardiologist who diagnosed me and helped me to understand what I have. Also a tip that helps me a lot is to make sure to eat something small and drink water every 3 hours, it keeps my blood pressure stable

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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