The Alike Team

16d

Which word best describes how you feel combating a chronic illness?

Chronic Restlessness and Agitation

Lethargy

Generalized pain

Acute Anxiety

Memory Loss

acute lethargy

Restlessness and Agitation

Chronic Generalized pain

View all
  • DitsyDiabetic

    16d

    It’s not just tired…. It’s a constant feeling of burnout from trying to act normal….

    • mrsnic45

      16d

      absolutely, couldn't agree more. Especially the 'invisible' illnesses.

  • AstraDragon

    16d

    Alienated It feels like those who see me at my worst run and never look back 😥

  • tigerbear

    16d

    Hopeless.

  • Teardrops

    16d

    I am tired of trying to get help and it’s like fruitless. Doctors don’t listen, don’t return calls, and dismiss me because I don’t respond to the treatment they are doing even when it causes harm to me

  • KhronicKoder

    16d

    All of the above? 😐

  • Tired247

    16d

    Tired and frustrated. There's a reason for my name

  • LadyBrownharth

    16d

    I'm frustrated and I'm tired. I do so much to limit my pain and it's time consuming and boring and seems like it doesn't help [until I stop then I realize how much pain it did save me from] a feel trapped in a routine I hate but can't survive without. I'm not free to do or eat what I want and I hate not being able to get help with it. I'm tired of doctors acting like I'm not in enough pain because I'm not curled up in ball bawling or flopping around crying like a toddler. They don't believe I'm up at 6:30 stretching before breakfast walking after each meal and stretching before bed just so I'm not suffering. Eating an Anti inflammation diet that also cover my other health concerns to the point that I now hate food because I'm overweight. They think I just don't do enough, but I'm doing all I can. I need help but I can't convince them I'm even in pain.

    • LadyBrownharth

      16d

      And I really make amazingly good tasting and healthy foods that people love... except me because I'm spiteful that it's perfect but doesn't help... that much. Depressing maximus.

    • Starsunmoon

      3d

      I also find it so tiring constantly having how much pain you are in questioned. I have broken bones and had injuries of that level 10 pain, and they are simply nothing compared to the toll of being at a 4/5/6 pain daily and not being seen because it’s ‘not bad enough’

  • AnimalBoy

    16d

    Tired definitely could sum it up but it's so much more than that and there's a sad/hopelessness to it. It's hard and I dont really know how else to describe it.

  • kateafranklin

    16d

    sad and upset. Angry. Lonely. scared. Anxious. Tired. Burnt out. And a little bit of optimism amidst the negative emotions

  • Olivebutter2236

    16d

    Helpless and Hopeless

  • serendi

    15d

    Honestly, it depends on which one it is and why it’s flaring so badly. Sometimes I’m just frustrated as heck. Sometimes I’m just exhausted. Sometimes I feel hopeless. Sometimes it’s one and changes into another.

  • Denotchka

    15d

    I want out of Fresenius and out of dialysis period. I feel like I’m being held hostage medically.

  • Starcycle

    15d

    Honestly I find a kind of hope in my illness. What's tiring is everyone else. But that's not my body's fault. Not my fault. It's trying it's best and where it can't I help it as much as I can. There's a kind of strange beauty to that, you know?

    • Starcycle

      15d

      Not to say I don't get frustrated at all, of course.

    • Starsunmoon

      3d

      I needed this reminder. All of us on here are fighting against bodies that are just trying to do their best for us but they can’t. It’s a very hard thing to try and love your body when it causes you so much pain

  • LynnKenzie

    15d

    Alone, so utterly alone

  • UpendedLife

    15d

    Frustrated, angry, scared and everything inbetween. It’s upended my life. Stopped me from doing what I was planning to do. One year ago my life changed

  • Bre19

    13d

    Feeling like there is no way out and I'm trapped

  • chesilchick

    13d

    I get really frustrated as I can't do the things I used to, I fall easily aswell which don't help, I'm constantly exhausted and trying to keep on top of the house is impossible,

  • CraftyMama

    11d

    Frustrated because when you have several chronic conditions a treatment used for one may make the others worse so its a constant pick your battles approach to healthcare

  • Betta

    11d

    I put optimistic but I am a Stoic and likely manic

  • misty8811

    9d

    All of the above tbh its really really hard to get any good advice or find people who suffer the same to talk to and try to help each other

  • Apple59

    9d

    Hi guys did someone tried chromium picolonate? Tried them once for a month and they worked great to the point my GP asked to stop having the medications i had but after two months my glucose levels went up . Tried them for longer to no avail!!!!

  • EmzPow

    9d

    All of the above and totally broken... 😥😢

  • jam064

    9d

    I was angry for a long, long time. Now I've accepted it and just feel neutral. It is what it is and it's not going to change.

  • IceGoddess

    8d

    Draining was the top word for me

  • Twinkle54

    8d

    I do what my doctor says, but I'm willing to try new things and think outside the box, so to speak.

  • Starsunmoon

    3d

    Invisible. People always tell me I look so healthy and they don’t believe I am sick, or I couldn’t be sick because of my capabilities, but I’m so frustrated and tired of being overlooked. I’m struggling and I want to scream I’m not ok more than anything, I want people to understand, but at the same time I don’t think I could stand pity either

  • DodoWaddle

    3d

    I mostly feel neutral. It's been like this so long, it has become my normal. It's barely a fight. It's like living in a haunted house but you know every ghost and every creaky floorboard. Sure, some ghosts still like to mess with you but it's like, "not again Barry" rather than horror I wouldn't describe it as a combat, but a slog

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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