I am tired of trying to get help and it’s like fruitless. Doctors don’t listen, don’t return calls, and dismiss me because I don’t respond to the treatment they are doing even when it causes harm to me
I'm frustrated and I'm tired. I do so much to limit my pain and it's time consuming and boring and seems like it doesn't help [until I stop then I realize how much pain it did save me from] a feel trapped in a routine I hate but can't survive without. I'm not free to do or eat what I want and I hate not being able to get help with it. I'm tired of doctors acting like I'm not in enough pain because I'm not curled up in ball bawling or flopping around crying like a toddler. They don't believe I'm up at 6:30 stretching before breakfast walking after each meal and stretching before bed just so I'm not suffering. Eating an Anti inflammation diet that also cover my other health concerns to the point that I now hate food because I'm overweight. They think I just don't do enough, but I'm doing all I can. I need help but I can't convince them I'm even in pain.
And I really make amazingly good tasting and healthy foods that people love... except me because I'm spiteful that it's perfect but doesn't help... that much. Depressing maximus.
I also find it so tiring constantly having how much pain you are in questioned. I have broken bones and had injuries of that level 10 pain, and they are simply nothing compared to the toll of being at a 4/5/6 pain daily and not being seen because it’s ‘not bad enough’
Tired definitely could sum it up but it's so much more than that and there's a sad/hopelessness to it. It's hard and I dont really know how else to describe it.
Honestly, it depends on which one it is and why it’s flaring so badly. Sometimes I’m just frustrated as heck. Sometimes I’m just exhausted. Sometimes I feel hopeless. Sometimes it’s one and changes into another.
Honestly I find a kind of hope in my illness. What's tiring is everyone else. But that's not my body's fault. Not my fault. It's trying it's best and where it can't I help it as much as I can. There's a kind of strange beauty to that, you know?
I needed this reminder. All of us on here are fighting against bodies that are just trying to do their best for us but they can’t. It’s a very hard thing to try and love your body when it causes you so much pain
Frustrated, angry, scared and everything inbetween. It’s upended my life. Stopped me from doing what I was planning to do. One year ago my life changed
I get really frustrated as I can't do the things I used to, I fall easily aswell which don't help, I'm constantly exhausted and trying to keep on top of the house is impossible,
Frustrated because when you have several chronic conditions a treatment used for one may make the others worse so its a constant pick your battles approach to healthcare
Hi guys did someone tried chromium picolonate? Tried them once for a month and they worked great to the point my GP asked to stop having the medications i had but after two months my glucose levels went up . Tried them for longer to no avail!!!!
Invisible. People always tell me I look so healthy and they don’t believe I am sick, or I couldn’t be sick because of my capabilities, but I’m so frustrated and tired of being overlooked. I’m struggling and I want to scream I’m not ok more than anything, I want people to understand, but at the same time I don’t think I could stand pity either
I mostly feel neutral. It's been like this so long, it has become my normal. It's barely a fight. It's like living in a haunted house but you know every ghost and every creaky floorboard. Sure, some ghosts still like to mess with you but it's like, "not again Barry" rather than horror
I wouldn't describe it as a combat, but a slog
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.
Share
Copy Link
Copied
Join the Alike community
Discover your Alikeness™ with people who are on the same journey, gain wisdom and get emotional relief in a secure & anonymous space.
The Alike Team
16d
Which word best describes how you feel combating a chronic illness?
15
32
Share
Chronic Restlessness and Agitation
Lethargy
Generalized pain
Acute Anxiety
Memory Loss
acute lethargy
Restlessness and Agitation
Chronic Generalized pain
DitsyDiabetic
16d
7
AstraDragon
16d
2
tigerbear
16d
1
Teardrops
16d
2
KhronicKoder
16d
5
Tired247
16d
1
LadyBrownharth
16d
2
AnimalBoy
16d
2
kateafranklin
16d
1
Olivebutter2236
16d
1
serendi
15d
0
Denotchka
15d
0
Starcycle
15d
0
LynnKenzie
15d
0
UpendedLife
15d
0
Bre19
13d
1
chesilchick
13d
0
CraftyMama
11d
1
Betta
11d
0
misty8811
9d
0
Apple59
9d
0
EmzPow
9d
0
jam064
9d
0
IceGoddess
8d
0
Twinkle54
8d
0
Starsunmoon
3d
0
DodoWaddle
3d
0
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision