Struggling with a Chronic Disease

Hi ! I have lived with this condition for 21 yrs. I have had them under the breast which resolved after a breast reduction and in the groin area. No starting behind my ears! No medication ever cured. I use antibiotic ointment for anything that is flared and oral antibiotic if really inflamed and not draining. I live in PA and have applied for clinical trials but never accepted to do so to date. My lesions are stage 4 with tracts and scaring. I have consulted with dermatologist and was told skin grafting was the only treatment and not guaranteed. I've consulted infectious disease and treated with antibiotics when infected but it's not an infectious condition primary. I havevused hibicleanse as a wash and that keeps them from flaring but very expensive. As of late no flares, but stress definitely affects their state. Any input or BDP are appreciated. Thanks in advance ☺️

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