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xylodomicile

794d

okay, good update, no celiac but šŸ˜” i dunno. does anyone get depressed after a procedure with no diagnosis because it means you were through a bunch of bs just to know nothing again. at least with celiacs id know what's causing my stomach pain and nausea and weight loss

Top reply
    • Opal

      793d

      100% agree it is grief of possibly feeling better! LOVE that wording so perfectly explain the emotion. Thank you bubbies! And yes, went through this for a year and a half and FINALLY found my answers last week. It feels surreal. It made me realize that every test, every time a doctor looked at me and said ā€œnothing is wrong, the labs are totally normal and you look great and youā€™re young and healthy, you should see a counselorā€ each time a took that blow to my hope, to my sanity brought me one step closer to the truth. None of it was in vain because without it I wouldnā€™t be where I am today: on the road to treatment and recovery!!!šŸ¤ÆšŸ˜†šŸ˜† so know weā€™re grieving with you, but please donā€™t give up hope.

    • Opal

      793d

      100% agree it is grief of possibly feeling better! LOVE that wording so perfectly explain the emotion. Thank you bubbies! And yes, went through this for a year and a half and FINALLY found my answers last week. It feels surreal. It made me realize that every test, every time a doctor looked at me and said ā€œnothing is wrong, the labs are totally normal and you look great and youā€™re young and healthy, you should see a counselorā€ each time a took that blow to my hope, to my sanity brought me one step closer to the truth. None of it was in vain because without it I wouldnā€™t be where I am today: on the road to treatment and recovery!!!šŸ¤ÆšŸ˜†šŸ˜† so know weā€™re grieving with you, but please donā€™t give up hope.

    • Bubbies

      793d

      For me, those times that Iā€™ve finally figured out whats going on, it finally gives me a sense of control in what my body is doing to me because once I know, I can find the meds, the treatments, do the research, anything and everything. I can find ways to combat it and try to get better. When I have no idea itā€™s so much more overwhelming and frustrating because thereā€™s nothing I can effectively do to fix it or feel better. There is always a sense of relief when I finally get a real diagnosis. And honestly I think itā€™s grief I feel when they say ā€œwe didnā€™t find anythingā€ because Iā€™m grieving the loss of that possibility of feeling better. I go through all the stages until I get back to acceptance and start all over again. Also, Iā€™ve had major issues with nausea too for years and ginger capsules were a game changer for me. And the fact that itā€™s a natural remedy is a nice plus. Hope you feel better!

    • Pfeiffer

      793d

      I went through this for a year, itā€™s rough. Every test was negative and all the time I spent running around for different imaging and tests felt like such a waste.

ā˜ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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