been researching the new medication bentlysta... Has anyone tried it? does it have reduce flare ups? this recent flare up has lasted a month so far with no break and im so over it. i wanna talk to my dr bout this meds but i dont even know if it will help....
Systemic Lupus Erythematosus (SLE)
Hi! I just started mine it does help a lot it's supposed to help us go into remission and eventually take us off prednisone if you're on it already
I hope that's what they try on me
I've been taking benlysta and had my recent 3rd infusion. I feel 100% times better, I don't really feel fatigued, I feel more energized and I don't feel much joint pains as before. I feel like you should talk to your Dr about your meds and figure out why you're having a flare up.
well i was just recently diagnosed with it and drs are still looking into a couple other things that are going on, but after a year of feeling like this i just dont want to be feeling this bad for the rest of my life. This really gives me hope that life will get more manageable.
Don't give up! I also thought that way too and my Dr put me on benlysta and I feel so much better
hi Shannice! do you take any other medications for lupus?
I'm taking syndriod, Prednisone, mycophenolate, ferrous sulfate,folic acid, plaquinal and metrolol
thank you! how long have you been on plaquenil? I feel like it’s not working for me. I
I've been on plaquinal since like 2014
Benlysta didn’t work well with it cause me to be hospitalized and my doctor had to put me on prednisone and started a new medication 💊
That medication honestly gave me my life back!
Hi!.. I’ve been doing some research on Benlysta too. I just don’t know how to go about asking my rheumatologist about it. She always says there’s nothing else to add to treatment other than hydroxychloroquine and Duloxetine.
Benlysta didn’t help me but my dr gave me an at home injection called Acthar Gel and I can honestly say that it has saved me. My flare ups aren’t as often as they were and it helps me immensely!! Ask your Rheumatologist about it… it’s worked wonders for me thank God!!:))
I also went through 14 rounds of Chemotherapy, Cytoxin, when I was first diagnosed and I wouldn’t b here today without those treatments.
Hang in here, I totally understand what you’re going through. U can find me on FB under Breann Van Fleet if u ever need support or to talk to someone who understands what you’re going through.. I’d love to b if help if I can!!:))
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