How old were you when you were diagnosed with POTS?
Postural Orthostatic Tachycardia Syndrome (POTS)
Symptoms Involving Nervous & Musculoskeletal Systems
Paroxysmal supraventricular tachycardia
I wasn't diagnosed until I was 26
what was your process of getting a diagnosis?
About 15 when I was diagnosed, was about 23-25 when it got significantly better. I’m 28 now. Still have it but it’s still significantly better and I don’t require medications or IVs anymore.
what was the process you went through to get your diagnosis
so I saw a POTS and EDS specialists. My pots at the time was so bad they didn’t need to do a tilt table test and though one would be too much for my body. He was able to diagnose me with medical history, a BP and heart rate journal he asked me to keep, a halter monitor, and BP testing laying down, sitting, and standing in his office repeated over a few visits.
I was 20 when I got diagnosed. I got really lucky, because for me the process was easy. I saw a cardiologist who did a holter monitor. Then she ordered a tilt table test which confirmed POTS. I had to see one cardiologist before her, and he was really dismissive (didn’t want to run any tests), but once I found the doctor who diagnosed me, it was really easy
It took me YEARS to be diagnosed. i was 20 when they finally did
I was 19 at diagnosis but symptoms started at 13
i was actually diagnosed with atrial tachycardia at 17, after experiencing symptoms since i was around 13. mine isn’t too extreme but to get diagnosed i went to a cardiologist and had a stress test, then a heart monitor for a week
I’ve had symptoms for a long time but diagnoses about 2 years ago, age 16
I was 15 and im now 21
19. I'd been having symptoms since I was about 14-15 though. I'm now 21
Same here, except 20 now.
Diagnosed at 17 but I've experienced symptoms most of my life, initially getting worse at 15!
35 I suspect I’ve had dysautonomia since I was a teen. During my teen years I had vasal Vagal syncope, I believe it’s being renamed and physicians think it’s all part of the same thing.
Age 23. It took a lot of throwing up at pet stores to make people put the pieces together right finally.
19, but I had symptoms for well over 4 years with charts to prove I have it.
Oh, I already responded 😂 Fibro brain fog, sorry.
I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore
I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage
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