rosieee

310d

How old were you when you were diagnosed with POTS?

Postural Orthostatic Tachycardia Syndrome (POTS)

Symptoms Involving Nervous & Musculoskeletal Systems

Paroxysmal supraventricular tachycardia

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  • Sadchemist

    310d

    I wasn't diagnosed until I was 26

    • rosieee

      310d

      what was your process of getting a diagnosis?

  • Brynn36

    310d

    About 15 when I was diagnosed, was about 23-25 when it got significantly better. I’m 28 now. Still have it but it’s still significantly better and I don’t require medications or IVs anymore.

    • rosieee

      310d

      what was the process you went through to get your diagnosis

      • Brynn36

        310d

        so I saw a POTS and EDS specialists. My pots at the time was so bad they didn’t need to do a tilt table test and though one would be too much for my body. He was able to diagnose me with medical history, a BP and heart rate journal he asked me to keep, a halter monitor, and BP testing laying down, sitting, and standing in his office repeated over a few visits.

  • BoomerangValentine

    310d

    I was 20 when I got diagnosed. I got really lucky, because for me the process was easy. I saw a cardiologist who did a holter monitor. Then she ordered a tilt table test which confirmed POTS. I had to see one cardiologist before her, and he was really dismissive (didn’t want to run any tests), but once I found the doctor who diagnosed me, it was really easy

  • Jillfp511

    310d

    It took me YEARS to be diagnosed. i was 20 when they finally did

  • Leighton

    310d

    I was 19 at diagnosis but symptoms started at 13

  • NewYork

    310d

    About 15

  • teeny

    310d

    i was actually diagnosed with atrial tachycardia at 17, after experiencing symptoms since i was around 13. mine isn’t too extreme but to get diagnosed i went to a cardiologist and had a stress test, then a heart monitor for a week

  • MJ17

    310d

    I’ve had symptoms for a long time but diagnoses about 2 years ago, age 16

  • kingseijuro

    309d

    I was 15 and im now 21

  • Tao

    309d

    16

  • Tot

    309d

    23

  • hazyeclipse

    308d

    19. I'd been having symptoms since I was about 14-15 though. I'm now 21

    • SJP

      303d

      Same here, except 20 now.

  • outpickingdandelions

    301d

    Diagnosed at 17 but I've experienced symptoms most of my life, initially getting worse at 15!

  • Weeble_Wobble

    299d

    35 I suspect I’ve had dysautonomia since I was a teen. During my teen years I had vasal Vagal syncope, I believe it’s being renamed and physicians think it’s all part of the same thing.

  • AudaCity

    299d

    Age 23. It took a lot of throwing up at pet stores to make people put the pieces together right finally.

  • SJP

    298d

    19, but I had symptoms for well over 4 years with charts to prove I have it.

    • SJP

      298d

      Oh, I already responded 😂 Fibro brain fog, sorry.

  • Tinyty

    296d

    I’m on a heart monitor right now the cardiologist wasn’t seeming comfortable with pots with a tilt table test but rhumologist did one . What do I do now? With the holster monitor for 7 days catch anything or bring me closer to what I should do next ? Or will it be a dead end where the cardiologist doesn’t even look at pots anymore I do have a severe b12 issue not sure if it’s mimicking pots or if it caused pots from nerve damage

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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