How did your fibromyalgia start?

I started getting pain in my legs. I kept worrying it was a blood clot or something but there was never anything wrong.

Migranes and Vulvodynia but when I was young I remember screaming with horrible leg pain in the cold which dr.s said it was growing pains

We dont entirely no as i think i suffered it back in school but it took a motorbike accident to make it worse

I randomly woke up one day with neck and jaw pain. It eventually spread to my chest and back.

I had been dealing with chronic pain and sensitivity for 20 years. I kept being told either that it was arthritis or all in my head. Finally, I could barely walk. My gp sent me to get tested for MS. Turns out it was severe fibromyalgia. I am finally getting care for it!

I'd had joint pain for years but anything I'd said to doctors had been dismissed so I saw no point going about this if all they would say was so take some paracetamol. My partner was the one that talked me into it. Moved to a new gp surgery and my partner helped with making the list of issues to address. He'd been getting more and more worried about how bad things seemed to be - not being able to open anything, no longer able to hold a pen to do my work, taking 3x as long to walk anywhere due to struggling both up and down hills etc.

mine is secondary from my crmo, i think that its probably been manifesting for a while but unnoticed due to my crmo

I had lived with chronic back pain since I was 5, so I figured pain was normal. I had a series of illnesses in my late teens, and when I got pregnant at 20, the fatigue because unbearable. The doctors ran a bunch of tests and said it was probably chronic fatigue. My grandmother however thought it was fibromyalgia. I was like 'yeah, but there's not that much pain'. After my son was born it was so much worse. Again doctors ran tests, said it was all in my head. And then one day 5 years after the birth of my son, I was putting dishes away, and my arms just stopped working. I dropped a whole stack of plates, collapsed to the floor and blacked out. More tests, and this time we found the answer.

I had a severe bout of eosinophilia. Basically for like 3 years, a type of white blood cell ate at my lungs. I had so much inflammation that I think it damaged the nerves or tissues. It made everything hurt. When I got better, the pain never rly went away

I was laying in bed crying because my ankles hurt and the sheets hurt. My mom had said I something about fibromyalgia when I said my skin hurts. I said that since I was 16. I was 24 before a doctor did the fibro test and was like "I don't know how no one did this before"

For me it was this terrible pain in both of my legs! I would wake up crying in the middle of the night

I was already going to the doctor to try to see why I was in so much pain and all the time and finally after one of my 3 week blood test it came back that I had RA and the doctor did the fibromyalgia test on me and I hit all the marks. I wanted to cry during the test because it hurt so bad and then them saying I had it was horrible. I knew what was to come more blood taken and more test and more meds . Another journey! I got to say tho we are extra strong because this not only messes with our body but our minds as well !!!! We have to be more strong and tuff than the rest of people. So people pat yourself on the back and keep going we’re unstoppable

For me it started with light sensitivity rash, extreme fatigue, and than over a while slight body aches and pain that is just getting worse as time goes on… now it is bad I was dx with lupus and fibro. I have a plethora of symptoms that intertwine with both and it just is hard to manage everything.

The same thing happened to me it was during the beginning of the pandemic and I was online all the time so I thought it was carpal tunnel, but the burning feeling got so bad I couldn’t wear certain clothes and wind and slight touches hurt my skin. I knew it wasn’t normal. After a while more symptoms showed up and the joint pain was so bad I felt like I was constantly bruised. it took me almost a year to get diagnosed since my doctors didn’t know what else it could be.