Has anyone dealt with feeling like they were misdiagnosed? How do you go about trying to get that corrected? Specialists are so tunnel vision in their area of expertise and primary cares who can look at the whole picture know a little about a lot of things, but are expert in no specific specialty especially rare conditions.

I recently received a new diagnosis about two weeks ago and the more I learn it’s a much better fit and is making me question three or four diagnoses I got over the last three years.

Chronic Pain


Sjogren's syndrome (SjS, SS)

Fibromyalgia (FM)

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  • Scorpiostelliem


    There’s really no “master list” kept anywhere, if you feel one diagnosis fits you better, then just start using that label! It’s very common that people are diagnosed one thing based on what was known at time but that picture later becomes more discernibly something else, and it can and often does override those earlier labels.

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