So devastated right now. I have felt better than ever since I started taking Trikafta 6 months ago, but one of my doctors just messaged me to stop taking it because my bilirubin is elevated. I don’t know how to deal with this. I could barely get out of bed most days before I started Trikafta.
Cystic Fibrosis (CF)
I'm so sorry to hear that love. Did he suggest any other medications in the mean time?
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I have CF and have Been on trikafta a couple of years. Trikafta has tremendously helped me but noticed that I have a lot more side effects of it when I eat or drink any sugar or alcohol at all I know that sounds like such a bad answer but give cutting both those out a long with avoiding any foods that are inflammatory. Feel free
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