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Frustrated with Undiagnosed Autoimmune Disease Symptoms

starryinkynight

423d

im on my journey of being diagnosed with an autoimmune disease and feeling frustrated :(. ive been tested for all the common ones, + thyroid and rheumatoid test that came back negative. my only outstanding symptoms are hypermobility and joint pain, plus the normal keynotes of an autoimmune disease. is there anything specifically i should ask to test for? (i am a teenager, been testing since summer 2022)

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Autoimmune disease, not elsewhere classified

Hypermobility Syndromes

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    • Officialishness

      416d

      I would look into EDS (not just hypermobility, there are many many forms of EDS) and look into answers that may not be autoimmune. Lots of autoimmune symptoms are also associated with other illnesses, genetic disorders, and diseases - it’s important to look everywhere and exhaust all options from autoimmune to genetic and even less common causes such as environmental factors for symptoms. I hope you find answers 😢💕

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    • Officialishness

      416d

      I would look into EDS (not just hypermobility, there are many many forms of EDS) and look into answers that may not be autoimmune. Lots of autoimmune symptoms are also associated with other illnesses, genetic disorders, and diseases - it’s important to look everywhere and exhaust all options from autoimmune to genetic and even less common causes such as environmental factors for symptoms. I hope you find answers 😢💕

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    • Leeeee

      420d

      Try searching about Ehlers-Danlos Syndrome, specifically the Hypermobility type. H-EDS is what I have and those are some of the things I experience too! It might not be that but it is worth a shot

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      • starryinkynight

        417d

        @Leeeee tysm!! ill ask my rheumatologist abt it next time i have an appointment

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    • pianolover314

      423d

      I was pretty much this but I just got diagnosed with chronic pain syndrome and lipomas

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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