See Alike in...

Alike App

Browser

EDSdancer

548d

As I’m loosing my ability to be as active as I’d like to be, I’m really grieving my life before when I could dance like everyone else. How do you all cope with the loss of something so crucial to your identity?

Top reply
    • EDSdancer

      545d

      @coffeeandcuddles thank you 💕

    • coffeeandcuddles

      546d

      Hey friend! I'm actually a dancer, too. For the longest time I wanted to be a professional dancer and started going to college for it. And then... my first PsA flare happened. Coupled with EDS, it was so hard I made the decision to come home. For me, the most instrumental part of getting through the grief I felt over "losing" my future career was learning to accept that it's okay for something to be a hobby that I enjoy, rather than my whole life. It's not easy, but it's actually caused dance to bring a lot more joy to my life than it ever did before. When my mentally was "this is who you are and you can't do it anymore" it sucked the joy out of life for me. Changing it to "do it when you're able because you like it" helped me learn to be more gracious to myself during hard days, and thankful for what I can do on the easier days. Easier said than done but if I got through it, I promise you can too

      • EDSdancer

        545d

        @coffeeandcuddles thank you 💕

    • Lunasbook

      548d

      Maybe not the most helpful of coping, but at least for right now the belief I’ll be able to get back to a point where I can be active again, even if it’ll never be to the point I used to be. I was never the most active person but I did go to the gym here and there, I rock climbed, and I was prepping my body for a 10 mile hike. Now I’m worn out and hurting by going up or down a flight of stairs. I just want somewhere between those two. It’s definitely not the same as any kind of dance, but when I have a little extra energy I like to play dance dance revolution on some of the lower difficulties (and take out jumps) Finally, if you have access to a pool at all, I’ve always liked that I felt light and like I could twirl like I used to when I did ballet. At the very least it’s a bit easier on your joints that way. Maybe my comment has given you ideas. I hope it can give you some hope. At the very least I’m sending you good vibes all around

      • EDSdancer

        548d

        @Lunasbook thanks 😊 I love the pool idea! I don’t love swimming because it hurts my shoulders (and I’ve just never been good at it haha) but I like the idea of dancing in water where there isn’t so much weight on my joints. I hope you’re doing well physically and mentally ❤️

        • Lunasbook

          546d

          @EDSdancer oh I can’t do full on swimming at all due to a phobia but shallow water where I can just kind of move like I used to is real nice!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion