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megmoon

519d

ADHD medication for POTS. A little over a year and a half ago, I was prescribed Vyvanse (in a nut shell- the newer, reformed version of Adderall). This was huge in helping fight off the Chronic Fatigue Syndrome I deal with from POTS. At the time, I had gone on a POTS reddit community and found that a majority of the potsies there were doing the same thing and found it instrumental in being able to do the little things, like getting out of bed. I wanted to post this as a tip or advice for anyone finding the fatigue of POTE to be utterly unbearable, as I was at the time of my diagnosis. What I have found, along with a lot of the users in the POTS reddit community, was that a very (very) low dose of the stimulant helped replace some of the energy I had otherwise lost. The starting dose for Vyvanse is 30mg and I am only on 20mg. I cannot tolerate any more as my heart rate skyrockets. 20mgs is perfect for me and doesn’t affect my heart rate…(it’s always high lol, welcome to the world of POTS!) So if you’re reading this and tired of prolonged fatigue, I would recommend trying this route. A lot of psychiatrists prescribe based on diagnosis, meaning they aren’t likely to prescribe medication unless you have the main condition it’s mean to treat (in this case, ADD). However, my psychiatrist prescribed based on symptoms which is how I ended up on Vyvanse as someone with POTS. Definitely something to look into if you’re looking for some additional help!

Top reply
    • Amberd19

      453d

      Yes I take Adderall for narcolepsy and excessive daytime sleepiness due to pots and dysautonomia.. although I’ve been on it so long it’s not working anymore.. nothing else has helped like the Adderall.. and I’m struggling severely with being able to wake up, I’m laying down constantly and just can’t function!!

    • Amberd19

      453d

      Yes I take Adderall for narcolepsy and excessive daytime sleepiness due to pots and dysautonomia.. although I’ve been on it so long it’s not working anymore.. nothing else has helped like the Adderall.. and I’m struggling severely with being able to wake up, I’m laying down constantly and just can’t function!!

    • rylesmcgyles

      497d

      I just got prescribed Vyvanese for my newly diagnosed ADHD and yes, you are so right! I’ve been back and forth between the 20mg and the 30mg, and the 30mg definitely worked so much better but my heart couldn’t handle it, which kind of sucks because the 20mg doesn’t give me quite as much help, but it’s definitely an improvement!

      • megmoon

        456d

        @rylesmcgyles Aw, same here :/ Glad it helped though!!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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