Oden

273d

hello I'm Oden I have tonic clonic full grandma seizures kind of under control with with medication but still have one once in awhile I also have really bad anxiety

Generalized convulsive epilepsy

Psychogenic non epileptic seizure

Headache

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  • Wiccalite

    273d

    Hi! I’m Lee and I have absence seizures and grand-mal. Also a bunch of other stuff lol, but I’ve only been on my seizure journey for about a year

  • Wiccalite

    273d

    Did the hospital stay, multiple EEGS, and we’re working on meds! I’m getting closer to seizure control :)

    • Oden

      273d

      Ive had EEGs done before they never really told me anything more than I have seizure activity they can see it

      • Wiccalite

        273d

        yeah same with me. The hospital stay was the most telling bc they monitored me on camera and machine for 7 days

  • Oden

    273d

    I'm stable on tegretol I've tried every seizure med there is I've had seizures for 15 years keppra made my seizures worse keppra was a nightmare for me but everybody's different

  • Oden

    273d

    When I have a full tonic clonic grand mal which is all I have it's so scary I convulse for 5 mins then I'm out for an hour in that hour I roam around unconscious I try to open windows and door and escape my partner calms me down by rubbing my neck but I've punch him and gave him a black eye twice he knows I didnt mean to I walk around unconscious it's dangerous he trys to keep me on the floor by rubbing my neck it calms me and I usually wake up to him rubbing my neck because I have the worst damn headache when I wake

  • Oden

    273d

    I was getting out of the shower and had a seizure and fell head first naked behind the toilet that's how I was found so embarrassing

  • Oden

    273d

    I came to naked on the bathroom floor with my partner holding me he's my hero and a god send he takes good care of me if he didn't I'd probably be dead

    • signature_sauce

      272d

      i have been lucky enough to have been caught by people who cared about me, even if they’re not in my life anymore. a lot of the time i would’ve fell on a hard floor and i could’ve been seriously injured

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